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Patients' and their families' coping resources at six weeks following back surgery

Abstract

Background: New research knowledge of adult back surgery patients’ and family members’ coping resources can help promote the development of their family nursing. Purpose: The purpose of the study was to assess patients’ and their family members’ coping resources and related factors six weeks after back surgery. Methods: Quantitative data were collected from 61 patients and 50 family members by structured, self-administered instruments designed to measure their coping. Results: Important coping resources for patients and their families were found to involve patient’s motivation to recover, normalcy of daily life and the whole family’s trust in nursing staff. Patients’ overall coping was found to be negatively associated with deteriorated health and mood, insecurity regarding future, social isolation and increased problems in family life, whereas family members’ overall coping was negatively associated with the patient’s poor health status and the family members’ social isolation. Conclusion: Patients’ and their families’ coping resources are influenced by the patient’s health status and motivation to recover, by home circumstances, family relationships and family’s trust in nursing staff.

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Patients' and their families' coping resources at six weeks following back surgery

Author: Leikkola, Päivi,Helminen, Mika,Paavilainen, Eija,Åsted-Kurki, Päivi
Year: 2014
Source: https://trepo.tuni.fi/bitstream/10024/99785/1/patients%c2%b4_and_their_families_2014.pdf
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ORIGINAL ARTICLE
Pa ien s’ and hei amilies’ coping esou ces a six
weeks ollowing back su ge y
Päi i K. Leikkola1,2, Mika T. Helminen1, 3, Eija E-M. Paa ilainen1,2, Päi i M. Ås ed -Ku ki1, 3
1. Uni e si y o Tampe e, School o Heal h Sciences, Tampe e, Finland. 2. Hospi al Dis ic o Sou h Os obo hnia,
Seinäjoki, Finland. 3. Hospi al Dis ic o Pi kanmaa, Depa men o Resea ch Adminis a ion, Tampe e, Finland.
Co espondence: Päi i K. Leikkola. Add ess: The Hospi al Dis ic o Sou h Os obo hnia, FIN-60220 Seinäjoki, Finland.
Email: pai i.leikkola@epshp. i
Recei ed: Oc obe 13, 2013 Accep ed: Feb ua y 6, 2014 Online Published: Ma ch 17, 2014
DOI: 10.5430/cns. 2n2p105 URL: h p://dx.doi.o g/10.5430/cns. 2n2p105
Abs ac
Backg ound: New esea ch knowledge o adul back su ge y pa ien s’ and amily membe s’ coping esou ces can help
p omo e he de elopmen o hei amily nu sing.
Pu pose: The pu pose o he s udy was o assess pa ien s’ and hei amily membe s’ coping esou ces and ela ed ac o s
six weeks a e back su ge y.
Me hods: Quan i a i e da a we e collec ed om 61 pa ien s and 50 amily membe s by s uc u ed, sel -adminis e ed
ins umen s designed o measu e hei coping.
Resul s: Impo an coping esou ces o pa ien s and hei amilies we e ound o in ol e pa ien ’s mo i a ion o eco e ,
no malcy o daily li e and he whole amily’s us in nu sing s a . Pa ien s’ o e all coping was ound o be nega i ely
associa ed wi h de e io a ed heal h and mood, insecu i y ega ding u u e, social isola ion and inc eased p oblems in
amily li e, whe eas amily membe s’ o e all coping was nega i ely associa ed wi h he pa ien ’s poo heal h s a us and
he amily membe s’ social isola ion.
Conclusion: Pa ien s’ and hei amilies’ coping esou ces a e in luenced by he pa ien ’s heal h s a us and mo i a ion o
eco e , by home ci cums ances, amily ela ionships and amily’s us in nu sing s a .
Key wo ds
Su gical Pa ien , Family, Coping, Resou ces
1 In oduc ion
A spinal condi ion may a ec he pa ien ’s abili y o unc ion and wo k no mally [1-7]. In Finland, up o 40% o he days
spen on sickness allowance a e due o a ious musculoskele al condi ions [8]; in 2006, hese condi ions accoun ed o 30%
o he o al unemploymen pension expendi u e [4]. App oxima ely 15% o back pain pa ien s a e unable o wo k and one in
en pa ien s is in need o su gical ea men [9]. The numbe o back su gical p ocedu es inc eased by 40% in Finland in he
yea s 1996-2005. E en hough ea men imes a e sho e nowadays, he numbe o hospi aliza ion pe iods has g own [4]
and he o al heal h se ice expendi u e o back su gical ea men has inc eased [5]. Os eoa h osis, which is no only
con ined o he spinal a ea, is he mos cos ly musculoskele al disease o socie y in Finland [4]. In 2004, he e we e 7335
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hospi aliza ion pe iods o spinal su ge y in Finland. No na ional s a is ics a e a ailable on he sha e o men and
women [10]. Pa ien pa icipan s in his esea ch we e adul s, who had unde gone su ge y o disc he nia ion o spinal
s enosis. While he numbe o su ge ies o disc he nia ion has dec eased, spondylosyndesis and su ge y o spinal s enosis
ha e con inued o become mo e common [11].
The exis ing esea ch on back su gical pa ien s has ocused on examining he clinical esul s o su gical ea men [12 -16].
The ew s udies ha ha e been conduc ed om he pe spec i e o back su gical pa ien s deal wi h pa ien s’ expe ience o
pain [2, 3, 6], hei ea o becoming ill again [1], hei imp o ed physical unc ion [2, 3, 6, 7], hei abili y o wo k [1, 2, 6] and hei
pos ope a i e quali y o li e [5, 7]. The e a e ew s udies on he coping o his speci ic g oup o pa ien s and hei amilies,
and he knowledge emains agmen ed [9, 17, 18].
Pu pose and heo e ical backg ound o he s udy
The pu pose o his s udy is o desc ibe back su gical pa ien s’ and hei amilies’ coping esou ces and ela ed ac o s a
six weeks ollowing he su ge y. The esul ing knowledge can by use ul as a con ibu ion o he de elopmen o amily
nu sing. In he p esen s udy, amily consis s o wo pe sons; he pa ien and one close amily membe selec ed by he
pa ien . These pe sons iden i y hemsel es as amily membe s and hey a e joined oge he by sha ing o emo ional
closeness [19, 20]. Coping is de ined as an indi idual’s a emp s o deal wi h a ac o ha is pe cei ed as s ess ul. Coping is
seen as a p ocess which changes o e ime and si ua ion [21]. Coping esou ces a e in e nal cha ac e is ics [22] and each
pe son’s coping p ocess is indi idually cons uc ed [23]. This s udy desc ibes pa ien s’ and amily membe s’ ac ions in a
si ua ion ha calls o a g ea deal o esou ces. These include hei pe cei ed heal h, a i udes and sel -es eem [22]. O e all
coping in his esea ch e e s o pa ien s’ and amily memb s’ own es ima e o hei o e all coping. Spinal su ge y pa ien s
a e usually p esc ibed a sick lea e o 5-6 weeks, a e which hey a e expec ed o ha e eco e ed. This s udy ocuses on
his e y pe iod o ime.
Ea lie esea ch has shown ha being hospi alized and unde going su ge y a e majo li e e en s ha cause ea and
psychological s ess and inc ease he isk o dep ession and anxie y [21, 24]. Su ge y is o en ollowed by changes in
pa ien s’ coping a home and in hei ela ions wi h amily membe s and ela i es. Su gical pa ien s’ daily coping is
comp omised by pain, di icul y o mo e, inabili y o wo k and limi a ions o ee- ime ac i i ies, all o which may in u n
a ec hei mood and quali y o li e [9]. Family membe s a e also a ec ed. They o en expe ience he pos ope a i e ime as
s ess ul and bu densome [25]. They, oo, ha e o deal wi h changes in daily li ing and social ela ionships. Ti edness,
anxie y and dis ess ha e been ound o be common among amily membe s. They su e om being sepa a ed om he
pa ien and unde go pe iods o ea , helplessness and hopelessness. Inc eased inancial di icul y is also equen ly
epo ed [26, 27]. The si ua ion is especially demanding in case o aged pa ien s wi h impai ed cogni i e unc ion, whose
amily membe s epo inc eased dissa is ac ion and s ess du ing pa ien ’s eco e y [28].
The eco e y o pa ien s depends on hei age, leng h o sick lea e and on psychosocial ac o s [29]. Fo example, i has
been con i med ha pa ien s’ expec a ions on wo k e u n ha e an in luence on pain, sick lea e and disabili y and ha hei
ea -a oidance belie s con ibu e o a low quali y o li e [17]. Pa ien s’ highe le els o op imism and expec a ions ha e
been ound o esul in be e pe cei ed quali y o li e and in wo k e u n wi hin a yea ollowing su ge y [17, 30]. An
associa ion has been demons a ed be ween ac i e coping and physical eco e y om su ge y [31]. I has also been shown
ha pa ien s may, despi e ela i ely poo physical eco e y, eel ha he quali y o hei li e has imp o ed, much he same
way as pa ien s wi h be e physical eco e y epo [31].
In he ace o s ess and anxie y, bo h pa ien s and amily membe s engage in hei indi idual coping beha iou s [32-34].
Success ul pos ope a i e coping, assessed in e ms o pe cei ed ou come and heal h- ela ed quali y o li e, has been
associa ed wi h he indi idual’s ac i e e o s o deal wi h he si ua ion. Adap i e coping, social suppo as well as a
combina ion o se e al coping beha io s ha e been ound o be e ec i e [21, 24]. Pa ien s’ in e es in coping is ansla ed
in o ac i e pa icipa ion in ca e, which is likely o ha e a posi i e ou come on he inal eco e y ou come [35]. Pa ien s ha e
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been ound o cope, o example, by con inuing li e as no mally as possible, s ep by s ep. I has also been con i med ha
inc eased sel -ca e ega ding physical heal h educes pa ien s’ anxie y on pos -ope a i e days [36, 37]. In con as , pa ien s’
eco e y may be complica ed by hei educed li e sa is ac ion and lowe si ua ion-speci ic sel -con ol expec a ions [18].
Family membe s, on he o he hand, ha e been shown o equi e suppo and in o ma ion on how he pa ien should ac o
ensu e coping a home [38]. Wi h inc easingly sho hospi al s ays, amily membe s’ end o expec mo e om he hospi al
s a [39].
These backg ound ideas, oge he wi h u he li e a u e on pa ien s’ and hei amilies’ coping needs and expe iences,
o med a ounda ion o he c ea ion o an ins umen , whose pu pose was o measu e coping and help seek answe s o he
ollowing esea ch ques ions.
Resea ch ques ions
1) Wha kind o coping esou ces did pa ien s and hei amily membe s ha e a six weeks ollowing su ge y?
2) Which backg ound ac o s we e associa ed wi h pa ien s’ and hei amilies’ coping esou ces a six weeks
ollowing su ge y?
3) In wha way we e pa ien s’ and hei amilies’ coping esou ces associa ed wi h hei o e all coping a six weeks
ollowing su ge y?
2 Me hod
2.1 Resea ch design
This is a c oss-sec ional obse a ional s udy. Da a we e collec ed om 61 adul back su gical pa ien s and 50 amily
membe s in one cen al hospi al in Finland. A new li e a u e-based, sel -adminis e ed ins umen was de eloped o his
pu pose. In he esul s, pa ien s’ and amily membe s’ esponses o backg ound ques ions and o wel e g oups o
ques ions on coping esou ces as well as hei assessmen o hei o e all coping a e combined o analysis.
2.2 Ins umen
As no sui able ins umen o pa o ins umen was ound, a new ins umen was de eloped o measu e he coping o
pa ien s and amily membe s. This s udy uses wo o he h ee majo pa s o he ins umen s: backg ound ac o s and
pa ien s’ and amily membe s’ coping esou ces [40]. In addi ion, pa ien s and amily membe s we e p esen ed wi h a
Visual Analogue Scale (VAS), a 10 cen ime e long scale wi h a alue ange o 0-100. The VAS has been used in ea lie
esea ch o assess subjec i e expe iences, o example pain, mood, a en ion, sleep quali y, a i ude and abili y o unc ion.
In his s udy, he pa ien s and amily membe s we e asked o ma k hei assessmen o hei o e all coping a e su ge y on
he scale [41, 42].
In he i s sec ion o he ins umen , backg ound da a we e collec ed by ques ions on he pa ien ’s and amily membe ’s
age, sex, ma i al s a us, amily, employmen , social li e and he pa ien ’s illness ha equi ed su gical ea men . These
backg ound ac o s we e la e s udied o hei associa ion wi h esponden s’ coping esou ces. The coping esou ces
sec ion o he ins umen is based on ea lie esea ch on pa ien s and amilies expe iencing su ge y [18, 26, 37, 43] accessed
wi h help o a lib a ian om he da abases Cinahl (102), Cinahlcumula i eindex (174), B i ish Nu sing Index– (14),
O idMedline (143), Linda (29) and Medic (15). The li e a u e was sea ched o esul s on pa ien s’ and hei amilies’
coping needs and expe iences. This sec ion o he ins umen is also based on an ea lie pilo s udy conduc ed by he
au ho [44]. The ins umen o pa ien s was o mula ed i s and hen modi ied o p oduce an ins umen o amily
membe s.
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The ollowing li e a u e-based cons uc s we e o mula ed o he ins umen : pa ien s’ and amily membe s’ a i udes
owa ds u u e, pa ien ’s eco e y mo i a ion and ac i i y in sel -ca e, no malcy o daily li e, pa ien ’s and amily
membe ’s wellbeing, pa ien ’s mood changes, insecu i y ega ding u u e, de e io a ion o heal h, social isola ion, ea (o
losing he pa ien ) and he inc eased complica ions o li e oge he . In his s udy, hese cons uc s a e e e ed o as
componen s o coping esou ces. Responden s we e asked o use he Like scale o assess he impo ance o he abo e
componen s as cons i uen s o hei coping esou ces, wi h he op ion 1 indica ing he leas and 4 he highes le el o
impo ance. The e we e 2-11 ques ions pe componen on he ques ionnai es. Means we e calcula ed pe esponden and
pe componen , bu only o componen s in which a minimum o 80% o he i ems had been esponded o. In he
assessmen o o e all coping (VAS), sco es abo e 50 we e conside ed o indica e be e o e all coping.
2.3 Validi y and eliabili y
Bo h p e- es ing and expe panel consul a ion we e used o ensu e con en alidi y o he ins umen s. The expe panel,
which consis ed o h ee membe s wi h expe ise in esea ch, assessed he ace alidi y o each ins umen espec i ely.
The expe s we e consul ed o ensu e ha he ins umen con en s and ques ions we e clea and comp ehensible and ha
he ime gi en o p ospec i e pa icipan s was adequa e. Following his, bo h ins umen s we e es ed and commen ed on
by en heal h ca e p o essionals. The con en alidi y index was 0.88 o he pa ien ins umen and 0.87 o he amily
membe ins umen . Bo h alues a e good [45].
A eliabili y assessmen was also conduc ed o de e mine he ex en o which he ins umen measu ed wha i was in ended
o measu e and o assess ins umen eliabili y, s abili y and in e nal consis ency [46]. The C onbach alpha sco es anged
om 0.43 o 0.90 o pa ien s and om 0.13 o 0.89 o amily membe s. In bo h ins umen s, he ollowing componen s
showed poo e consis ency han he o he s: ac i i y in sel ca e (pa ien α = 0.56, amily membe α = 0.13); no malcy o
daily li e (pa ien α = 0.67, amily membe α = 0.21) and social isola ion (pa ien α = 0.43, amily membe α = 0.22).
Fu he mo e, wo componen s in he amily membe ins umen p o ed o ha e poo in e nal consis ency: a i ude owa ds
u u e (α = 0.57) and pa ien ’s and amily membe ’s wellbeing (α = 0.65). The p oblem may be due o he small numbe o
ques ions (2-7) wi hin hese componen s. Second, he ime passed since su ge y may ha e esul ed in he pa ly poo
in e nal consis ency o he amily membe s’ ins umen , because he pa ien ’s heal h may al eady ha e imp o ed
conside ably. The esponden s may ha e el ha he ques ions conce ned amily membe s o pa ien s who a e in a poo e
condi ion. The pa allel- o ms me hod could no be used in es ing eliabili y, as no sui able al e na i e ins umen was
a ailable. A es - e es analysis was uled ou because he phenomena o be examined we e no expec ed o emain s able
o e ime [47].
Finally, he ins umen was p e es ed in a pilo s udy conduc ed by he au ho [40] p io o he p esen s udy wi h pa ien s
(N=30) and amily membe s (N=30) selec ed by pa ien s. Fo he pilo s udy, ques ionnai es and co e ing le e s we e
handed o pa ien s and amily membe s in one hospi al du ing wo mon hs in 2008 and e u ned, oge he wi h consen
o ms, o he in es iga o by pos . The analysis in ol ed a s udy o equencies, dis ibu ions, means, s anda d de ia ions
and co ela ion. The e was no need o make amendmen s in he ques ionnai es. Da a om he pilo s udy we e no included
in he ma e ial o he p esen s udy.
2.4 Sample
The inclusion c i e ia o pa icipan s, bo h pa ien s and amily membe s, included: age 18 o olde , Finnish speaking,
awa e o he s udy objec i es and capable o esponding o he ques ionnai e. The pa ien s had ecei ed su gical ea men
o disc he nia ion o spinal s enosis and hey had been ca ed o on neu osu gical o o hopaedic wa ds in a cen al
hospi al in Finland. The amily membe s we e selec ed and ec ui ed by pa ien s. Na ional s a is ics we e i s s udied o
lea n he o al numbe o a ge g oup pa ien s in Finland and a s a is ician was consul ed o help assess how much ime
( wo yea s) would be equi ed o ob ain an adequa e sample. Da a collec ion was ended a e wo yea s. No powe analysis
was conduc ed. The da a we e collec ed be ween May 2008 and Augus 2010. The ques ionnai es, along wi h he Visual
Analog Scales, we e mailed o p ospec i e pa icipan s. The ini ial a ge g oup consis ed o 126 pa ien s and 126 amily
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membe s, o whom 61 pa ien s ( esponse a e 48%) and 50 amily membe s ( esponse a e 40%) e u ned he
ques ionnai e.
Table 1. Pa ien and amily membe backg ound da a
Backg ound ac o s Pa ien (N=61) Family membe (N=50)
N % N %
Sex
emale 31 51 27 54
male 30 49 23 46
Ma i al s a us
single 5 8 3 6
ma ied/cohabi ing 47 77 43 86
di o ced 7 11 3 6
widowed 1 2 1 2
missing da a 1 2 -- --
On ea nings- ela ed/disabili y
pension
no 43 70 40 80
yes 15 25 6 12
applica ion pending 1 2 1 2
missing da a 2 3 3 6
Unemployed
no 49 80 44 88
yes 5 8 3 6
missing da a 7 12 3 6
Family membe s
no child en 11 18 9 18
one o mo e child en 24 39 22 44
child en no li ing in he same home 23 38 14 28
missing da a 3 5 5 10
Leng h o sick lea e be o e su ge y ( esponse op ions gi en)
0-3 mon hs 22 36 -- --
>3 mon hs 21 34 -- --
missing da a 18 30 -- --
O he pe sis en disease
no 40 66 -- --
yes 20 33 -- --
missing da a 1 1 -- --
Fi s - ime ope a ion
no 15 25 -- --
yes 46 75 -- --
(Table 1 con inued on page 110)

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Table 1. (Con inued.)
Backg ound ac o s Pa ien (N=61) Family membe (N=50)
N % N %
Fi s ime as a amily membe o pa ien unde going
su ge y
no -- -- 28 56
yes -- -- 21 42
missing da a -- -- 1 2
P e ious ope a ions ( esponse op ions gi en)
none 13 21 19 38
one o mo e 48 79 29 58
missing da a -- -- 2 4
F ee- ime ac i i ies
no ee- ime ac i i ies be o e o a e illness 7 11 -- --
no ee- ime ac i i ies be o e o a e pa ien ’s illness -- -- 7 14
had o s op he ee- ime ac i i ies 21 34 -- --
i egula pu sui o ee- ime ac i i ies a e illness 24 39 -- --
i egula pu sui o ee- ime ac i i ies a e pa ien ’s
illness -- -- 21 42
egula ee- ime ac i i ies 6 10 20 40
missing da a 3 5 2 4
One o se e al con idan s
no 1 2 5 10
yes 60 98 43 86
Con ac wi h he mos signi ican pe son
daily 48 79 31 62
weekly 9 15 16 32
once a mon h 1 1 1 2
missing da a 3 5 2 4
The pa ien s’ mean age was 47.7 yea s ( ange 18-71) and he amily membe s’ 47 yea s ( ange 18-77). As shown in Table
1, a sligh majo i y o esponden s we e women. Mos pa ien s and amily membe s we e ei he ma ied o cohabi ing and
had one o mo e child en. In bo h g oups, a small mino i y o esponden s we e unemployed. All he pa ien s had been on
sick lea e du ing he pas yea , wi h li le a ia ion in he du a ion o sick lea e. Nea ly one hi d o he pa ien s had been
diagnosed wi h ano he ch onic disease. Fo mos pa ien s, his had been hei i s spinal su ge y. A sligh majo i y o
amily membe s had p e ious expe ience o being a su gical pa ien ’s amily membe , and in bo h g oups, he majo i y o
he esponden s had a his o y o ea lie su gical p ocedu es. One hi d o he pa ien s had been compelled o gi e up hei
ee- ime ac i i ies due o hei illness, whe eas amily membe s had con inued o pu sue hei in e es s. Bo h pa ien s and
amily membe s had one o se e al con idan s o pe sons o alk o. Mos o hem s ayed in con ac wi h such close pe sons
on a daily basis.
2.5 E hical conside a ions
The Na ional Ad iso y Boa d on Heal h Ca e E hics p inciples we e obse ed [48]. Pa icipa ion was olun a y and based
on in o med consen . The ques ionnai es we e mailed, gi ing each p ospec i e pa icipan ull eedom o decide whe he
o no o en e he s udy. All pa icipan s we e legally compe en adul s. Tampe e Uni e si y Hospi al E hical Commi ee
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pe mission (R07165H) and hospi al pe mission o conduc esea ch we e ob ained and he anonymi y o he esponden s
ensu ed.
2.6 Da a analysis
The S a is ical Packages o Social Sciences (SPSS) 18.0 o Windows was used o s a is ical analysis. Whe e needed,
i em sco es we e e e sed o make he alues di ec ionally consis en [49]. To help desc ibe da a and o u he analysis,
bo h pa ien s and amily membe s we e g ouped in o wo ca ego ies o almos equal size: he unde 45-yea -olds and hose
45 o olde . The esponses o i ems on esponden s’ coping esou ces we e sco ed as ollows: s ongly disag ee =1 poin ,
disag ee =2 poin s, ag ee =3 poin s and s ongly ag ee = 4 poin s. The esul s a e p esen ed using equencies, pe cen ages,
ange, means and medians. Since he da a we e no no mally dis ibu ed, non-pa ame ic s a is ical me hods
(Mann-Whi ney and K uskal-Wallis Tes s) we e used o assess ela ionships be ween a iables [49]. Spea man’s
co ela ion was also conduc ed o analyse he associa ion be ween he g oups o ques ions and assessmen o o e all
coping. A co ela ion was de e mined o be signi ican i he P- alue was below .05. Because o he limi ed sample size,
missing da a has no been complemen ed o eplaced o example by means du ing he analysis.
Table 2. Pa ien s’ and amily membe s’ expe iences o he componen s o coping esou ces
Componen s o coping esou ces Pa ien
Numbe Median Q= Q1-Q3
Family
membe
numbe
Median Q= Q1-Q3
A i ude owa ds u u e 60 3.50 3.00-3.80 50 3.33 3.00-3.53
Pa ien ’s eco e y mo i a ion 60 3.75 3.06-4.00 48 4.00 3.50-4.00
Ac i i y in sel -ca e 56 3.25 2.81-3.75 46 2.88 2.50-3.00
No malcy o daily li e 58 3.50 2.50-4.00 50 4.00 3.50-4.00
Pa ien ’s and amily membe ’s
well-being 59 3.00 2.71-3.57 50 3.21 2.82-3.71
Sha ed us in nu sing s a 57 3.67 3.33-4.00 48 4.00 3.42-4.00
Pa ien ’s mood changes 59 1.82 1.27-2.27 50 1.67 1.22-2.14
Insecu i y ega ding u u e * 52 1.83 1.00-3.00 44 2.17 1.00-3.00
De e io a ion o heal h * 59 2.40 1.70-2.90 50 1.94 1.50-2.72
Social isola ion * 58 2.25 1.50-3.00 49 1.50 1.00-2.50
Fea (o losing he pa ien ) 58 3.50 3.38-4.00 49 3.50 3.50-4.00
Inc eased complica ions o li e
oge he 59 1.63 1.25-2.13 49 1.71 1.14-2.14
(Scale 1-4, 4= s ongly ag ee, 3= ag ee, 2=disag ee, 1= s ongly disag ee).
* Re e se o de ing wi h low alues indica ing posi i e meaning
3 Resul s
3.1 Pa ien s’ and amily membe s’ coping esou ces
As shown in Table 2, i was ound ha acco ding o pa ien s, he mos posi i e componen s o hei coping esou ces we e
eco e y mo i a ion, no malcy o daily li e and esponden s’ sha ed us in nu sing s a . Fea was ound o deple e coping
esou ces. Inc eased complica ions o li e oge he and changes in he pa ien ’s mood, howe e , we e no conside ed o
ha e any majo con ibu ion. Simila ly, amily membe s also ega ded pa ien ’s eco e y mo i a ion, no malcy o daily
li e and sha ed us in nu sing s a as hei mos posi i e coping esou ces. They ound ha hei ea o losing he pa ien
dec eased hei coping esou ces, whe eas social isola ion due o he pa ien ’s illness, he pa ien ’s mood changes,
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inc eased complica ions o li e oge he and he de e io a ion o he pa ien ’s heal h did no a ec hei coping esou ces
signi ican ly.
3.2 Backg ound ac o s ela ed o pa ien s’ and amily membe s’ coping
esou ces
Compa ison by ma i al s a us e ealed ha pa ien s who we e sepa a ed o di o ced expe ienced mo e o en ha inc eased
complica ions o li e oge he had a ec ed hei coping nega i ely (p- alue o he di e ence .028). In compa ison, he
median o unma ied pa ien s was 2.50, o ma ied o cohabi ing pa ien s 1.50 and o widowed pe sons 2.86, so he e
was a signi ican di e ence be ween he g oups.
Rega dless o hei educa ional backg ound, amily membe s expe ienced ha hei a i ude owa ds u u e had been a
posi i e con ibu ion o hei coping esou ces. The di e ences be ween educa ional g oups we e p ac ically a he small;
he median o amily membe s wi hou any oca ional quali ica ion was 3.00, whe eas i was 3.25 o hose wi h uppe
seconda y le el educa ion, 3.60 o hose wi h a deg ee o diploma om a uni e si y o applied sciences o college and
3.33 o uni e si y g adua es (p=.039). In o he wo ds, hose wi h a ela i ely high educa ion had he highes sco e.
No majo di e ences we e ound be ween educa ional g oups in amily membe s conce ning hei a ing o he pa ien ’s
sel -ca e ac i i y as a coping esou ce. The median was 2.50 o amily membe s wi hou a oca ional quali ica ion, 2.75
o hose wi h uppe seconda y le el educa ion, 3.00 o uni e si y o applied sciences o college g adua es and 2.50 o
amily membe s wi h a uni e si y deg ee (p= .049). Again, hose wi h mo e educa ion, excep ing he mos highly educa ed
g oup, ound his componen sligh ly mo e impo an o hei coping han o he esponden s.
I was ound ha in pa ien s wi h an applica ion pending o ea nings- ela ed o disabili y pension, insecu i y ega ding
u u e had a s onge nega i e con ibu ion o hei coping esou ces han in o he g oups. Responden s wi h an applica ion
pending had a median o 4.00, whe eas hose in wo king li e had a median o 1.33 (p=.023) and hose al eady pensioned a
median o 3.00. In amily membe s, esponden s on ea nings- ela ed o disabili y pension el mo e s ongly (median 3.33)
ha hei insecu i y o u u e had con ibu ed o hei coping esou ces nega i ely han o he g oups. Wo king amily
membe s had a median o 1.67 (p= .019) and amily membe s wi h an applica ion pending a median o 2.68.
A signi ican associa ion was ound be ween pa ien s’ employmen s a us and insecu i y ega ding u u e as a componen
a ec ing coping esou ces. The median o employed people was 1.33, whe eas i was 3.00 o unemployed pa ien s
(p= .027). Wo king pa ien s expe ienced u u e as mo e secu e han unemployed pa ien s. Fu he mo e, he unemployed
esponden s el sligh ly mo e s ongly ha hei social isola ion had had a nega i e con ibu ion o hei coping esou ces.
This associa ion be ween pa ien s’ employmen s a us and social isola ion was s a is ically almos signi ican , wi h he
median o 2.00 o wo king and 3.00 o unemployed pa ien s (p= .045).
I espec i e o he numbe o ea lie ope a ions, pa ien s ega ded hei eco e y mo i a ion as a posi i e componen o
hei coping esou ces. The eco e y mo i a ion was mo e p onounced in he esponses o hose pa ien s, who had had
i s - ime su ge y o hei condi ion compa ed o pa ien s, who had ea lie expe ience o su ge y. The median o he
i s - ime su ge y g oup was 4.00 and o he la e g oup 3.13 (p=.012). As ega ds pa ien s’ a i ude owa ds u u e, hose
who had had i s - ime su ge y el mo e s ongly ha hei a i ude had posi i ely a ec ed hei coping esou ces (median
3.50), compa ed o pa ien s wi h ea lie expe ience o su ge y (median 3.00; p= .013). As o pa ien s’ de e io a ion o
heal h, i was ound o a ec coping esou ces nega i ely, i espec i e o he amoun o ea lie su gical expe ience. The
i s - ime su ge y pa ien s el his less s ongly. Thei median was 2.25, whe eas hose wi h p e ious expe ience o
su ge y had a median o 2.89 (p=.020).
The eco e y mo i a ion median o pa ien s who we e 45 o olde was 3.50, while i was 4.00 (p= .019) o unde
45-yea -old pa ien s. This is p ac ically no a e y signi ican di e ence, bu i indica es ha he eco e y mo i a ion o
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unde 45-yea -old pa ien s was a sligh ly s onge posi i e componen o hei coping esou ces. Opposi e esul s we e
ob ained o sha ed us in nu sing s a ; he olde age g oup a ed hei expe iences mo e posi i ely wi h a median o 4.00,
whe eas he unde 45-yea -old pa ien s had a median o 3.33 (p= .020). The unde -45-yea -old amily membe s a ed hei
u u e as sligh ly less insecu e (median 1.67) han he olde age g oup, whose median was 2.67 (p=.043).
3.3 Associa ion be ween pa ien s’ and amily membe s’ coping
esou ces and o e all coping
Pa ien s’ coping a six weeks ollowing su ge y was also assessed by s udying he associa ion be ween he VAS o e all
assessmen and he means calcula ed o each componen .
Table 3. Co ela ion s udy (Spea man’s co ela ion) on he ela ionship be ween componen means and pa ien s’ and
amily membe s’ o e all assessmen o pos ope a i e coping
Componen s o coping esou ces
N Co ela ion P- alue
Pa ien Family
membe
Pa ien Family
membe Pa ien Family
membe
A i ude owa ds u u e 60 50 .681 .313 .000 .027
Pa ien ’s eco e y mo i a ion 60 48 .716 .309 .000 .032
Ac i i y in sel -ca e 56 46 .292 .000 .029 .999
No malcy o daily li e 58 50 .595 .450 .000 .001
Pa ien ’s and amily membe ’s wellbeing 58 50 .569 .188 .000 .191
Sha ed us in nu sing s a 57 48 .330 .167 .012 .256
Pa ien ’s mood changes 59 50 -.720 -.514 .000 .000
Insecu i y ega ding u u e 52 44 -.536 -.122 .000 .430
De e io a ion o heal h 59 50 -.739 -.413 .000 .003
Social isola ion 58 49 -.677 -.540 .000 .000
Fea (o losing he pa ien ) 58 49 .295 .156 .024 .283
Inc eased complica ions o li e oge he 59 49 -.617 -.350 .000 .014
In Table 3 s a is ically signi ican esul s (p<.05) a e highligh ed in bold. The able shows how Spea man’s co ela ion
e ealed some s a is ically signi ican and meaning ul di e ences. The pa ien s who epo ed poo e mood, mo e insecu e
u u e, de e io a ed heal h, social isola ion and inc eased complica ions o li e oge he , also a ed hei o e all coping a
six weeks ollowing he su ge y as poo e han pa ien s wi h opposi e expe iences. In con as , pa ien s wi h a mo e
posi i e a i ude owa ds u u e, highe eco e y mo i a ion, expe ienced no malcy o daily li e and sha ed wellbeing,
a ed hei o e all coping as highe a six weeks a e he su ge y. Family membe s’ assessmen o coping was s udied by
he same me hod as ha o pa ien s. The analysis yielded s a is ically pa ly signi ican and meaning ul di e ences. Mos
no ably, hose amily membe s, who epo ed pa ien ’s changeable moods and hei own social isola ion, a ed hei o e all
coping as poo e a six weeks ollowing he pa ien ’s su ge y.
4 Discussion
Changes in amily ela ions o in pa ien s’ abili y o cope a home a e e lec ed on he whole amily’s coping esou ces [9].
In he p esen s udy, his associa ion was de e mined in bo h pa ien s and amily membe s; bo h el ha he pa ien ’s
eco e y mo i a ion, no malcy o daily li e and hei sha ed us in nu sing s a cons i u ed s eng hening and posi i e
coping esou ces. Acco ding o Salmenpe ä e al. [9] pa ien s’ mood a ec s hei coping in daily li e. The p esen s udy had
di e en esul s; bo h pa ien s and amily membe s a ed he ole o pa ien ’s mood changes as insigni ican a six weeks