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Patients' and their families' coping resources at six weeks following back surgery

Leikkola, Päivi,Helminen, Mika,Paavilainen, Eija,Åsted-Kurki, Päivi

Abstract

Background: New research knowledge of adult back surgery patients’ and family members’ coping resources can help promote the development of their family nursing. Purpose: The purpose of the study was to assess patients’ and their family members’ coping resources and related factors six weeks after back surgery. Methods: Quantitative data were collected from 61 patients and 50 family members by structured, self-administered instruments designed to measure their coping. Results: Important coping resources for patients and their families were found to involve patient’s motivation to recover, normalcy of daily life and the whole family’s trust in nursing staff. Patients’ overall coping was found to be negatively associated with deteriorated health and mood, insecurity regarding future, social isolation and increased problems in family life, whereas family members’ overall coping was negatively associated with the patient’s poor health status and the family members’ social isolation. Conclusion: Patients’ and their families’ coping resources are influenced by the patient’s health status and motivation to recover, by home circumstances, family relationships and family’s trust in nursing staff.

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www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 Published by Sciedu P ess 105 ORIGINAL ARTICLE Pa ien s’ and hei amilies’ coping esou ces a six weeks ollowing back su ge y Päi i K. Leikkola1,2, Mika T. Helminen1, 3, Eija E-M. Paa ilainen1,2, Päi i M. Ås ed -Ku ki1, 3 1. Uni e si y o Tampe e, School o Heal h Sciences, Tampe e, Finland. 2. Hospi al Dis ic o Sou h Os obo hnia, Seinäjoki, Finland. 3. Hospi al Dis ic o Pi kanmaa, Depa men o Resea ch Adminis a ion, Tampe e, Finland. Co espondence: Päi i K. Leikkola. Add ess: The Hospi al Dis ic o Sou h Os obo hnia, FIN-60220 Seinäjoki, Finland. Email: pai i.leikkola@epshp. i Recei ed: Oc obe 13, 2013 Accep ed: Feb ua y 6, 2014 Online Published: Ma ch 17, 2014 DOI: 10.5430/cns. 2n2p105 URL: h p://dx.doi.o g/10.5430/cns. 2n2p105 Abs ac Backg ound: New esea ch knowledge o adul back su ge y pa ien s’ and amily membe s’ coping esou ces can help p omo e he de elopmen o hei amily nu sing. Pu pose: The pu pose o he s udy was o assess pa ien s’ and hei amily membe s’ coping esou ces and ela ed ac o s six weeks a e back su ge y. Me hods: Quan i a i e da a we e collec ed om 61 pa ien s and 50 amily membe s by s uc u ed, sel -adminis e ed ins umen s designed o measu e hei coping. Resul s: Impo an coping esou ces o pa ien s and hei amilies we e ound o in ol e pa ien ’s mo i a ion o eco e , no malcy o daily li e and he whole amily’s us in nu sing s a . Pa ien s’ o e all coping was ound o be nega i ely associa ed wi h de e io a ed heal h and mood, insecu i y ega ding u u e, social isola ion and inc eased p oblems in amily li e, whe eas amily membe s’ o e all coping was nega i ely associa ed wi h he pa ien ’s poo heal h s a us and he amily membe s’ social isola ion. Conclusion: Pa ien s’ and hei amilies’ coping esou ces a e in luenced by he pa ien ’s heal h s a us and mo i a ion o eco e , by home ci cums ances, amily ela ionships and amily’s us in nu sing s a . Key wo ds Su gical Pa ien , Family, Coping, Resou ces 1 In oduc ion A spinal condi ion may a ec he pa ien ’s abili y o unc ion and wo k no mally [1-7]. In Finland, up o 40% o he days spen on sickness allowance a e due o a ious musculoskele al condi ions [8]; in 2006, hese condi ions accoun ed o 30% o he o al unemploymen pension expendi u e [4]. App oxima ely 15% o back pain pa ien s a e unable o wo k and one in en pa ien s is in need o su gical ea men [9]. The numbe o back su gical p ocedu es inc eased by 40% in Finland in he yea s 1996-2005. E en hough ea men imes a e sho e nowadays, he numbe o hospi aliza ion pe iods has g own [4] and he o al heal h se ice expendi u e o back su gical ea men has inc eased [5]. Os eoa h osis, which is no only con ined o he spinal a ea, is he mos cos ly musculoskele al disease o socie y in Finland [4]. In 2004, he e we e 7335 www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 ISSN 2324-7940 E-ISSN 2324-7959 106 hospi aliza ion pe iods o spinal su ge y in Finland. No na ional s a is ics a e a ailable on he sha e o men and women [10]. Pa ien pa icipan s in his esea ch we e adul s, who had unde gone su ge y o disc he nia ion o spinal s enosis. While he numbe o su ge ies o disc he nia ion has dec eased, spondylosyndesis and su ge y o spinal s enosis ha e con inued o become mo e common [11]. The exis ing esea ch on back su gical pa ien s has ocused on examining he clinical esul s o su gical ea men [12 -16]. The ew s udies ha ha e been conduc ed om he pe spec i e o back su gical pa ien s deal wi h pa ien s’ expe ience o pain [2, 3, 6], hei ea o becoming ill again [1], hei imp o ed physical unc ion [2, 3, 6, 7], hei abili y o wo k [1, 2, 6] and hei pos ope a i e quali y o li e [5, 7]. The e a e ew s udies on he coping o his speci ic g oup o pa ien s and hei amilies, and he knowledge emains agmen ed [9, 17, 18]. Pu pose and heo e ical backg ound o he s udy The pu pose o his s udy is o desc ibe back su gical pa ien s’ and hei amilies’ coping esou ces and ela ed ac o s a six weeks ollowing he su ge y. The esul ing knowledge can by use ul as a con ibu ion o he de elopmen o amily nu sing. In he p esen s udy, amily consis s o wo pe sons; he pa ien and one close amily membe selec ed by he pa ien . These pe sons iden i y hemsel es as amily membe s and hey a e joined oge he by sha ing o emo ional closeness [19, 20]. Coping is de ined as an indi idual’s a emp s o deal wi h a ac o ha is pe cei ed as s ess ul. Coping is seen as a p ocess which changes o e ime and si ua ion [21]. Coping esou ces a e in e nal cha ac e is ics [22] and each pe son’s coping p ocess is indi idually cons uc ed [23]. This s udy desc ibes pa ien s’ and amily membe s’ ac ions in a si ua ion ha calls o a g ea deal o esou ces. These include hei pe cei ed heal h, a i udes and sel -es eem [22]. O e all coping in his esea ch e e s o pa ien s’ and amily memb s’ own es ima e o hei o e all coping. Spinal su ge y pa ien s a e usually p esc ibed a sick lea e o 5-6 weeks, a e which hey a e expec ed o ha e eco e ed. This s udy ocuses on his e y pe iod o ime. Ea lie esea ch has shown ha being hospi alized and unde going su ge y a e majo li e e en s ha cause ea and psychological s ess and inc ease he isk o dep ession and anxie y [21, 24]. Su ge y is o en ollowed by changes in pa ien s’ coping a home and in hei ela ions wi h amily membe s and ela i es. Su gical pa ien s’ daily coping is comp omised by pain, di icul y o mo e, inabili y o wo k and limi a ions o ee- ime ac i i ies, all o which may in u n a ec hei mood and quali y o li e [9]. Family membe s a e also a ec ed. They o en expe ience he pos ope a i e ime as s ess ul and bu densome [25]. They, oo, ha e o deal wi h changes in daily li ing and social ela ionships. Ti edness, anxie y and dis ess ha e been ound o be common among amily membe s. They su e om being sepa a ed om he pa ien and unde go pe iods o ea , helplessness and hopelessness. Inc eased inancial di icul y is also equen ly epo ed [26, 27]. The si ua ion is especially demanding in case o aged pa ien s wi h impai ed cogni i e unc ion, whose amily membe s epo inc eased dissa is ac ion and s ess du ing pa ien ’s eco e y [28]. The eco e y o pa ien s depends on hei age, leng h o sick lea e and on psychosocial ac o s [29]. Fo example, i has been con i med ha pa ien s’ expec a ions on wo k e u n ha e an in luence on pain, sick lea e and disabili y and ha hei ea -a oidance belie s con ibu e o a low quali y o li e [17]. Pa ien s’ highe le els o op imism and expec a ions ha e been ound o esul in be e pe cei ed quali y o li e and in wo k e u n wi hin a yea ollowing su ge y [17, 30]. An associa ion has been demons a ed be ween ac i e coping and physical eco e y om su ge y [31]. I has also been shown ha pa ien s may, despi e ela i ely poo physical eco e y, eel ha he quali y o hei li e has imp o ed, much he same way as pa ien s wi h be e physical eco e y epo [31]. In he ace o s ess and anxie y, bo h pa ien s and amily membe s engage in hei indi idual coping beha iou s [32-34]. Success ul pos ope a i e coping, assessed in e ms o pe cei ed ou come and heal h- ela ed quali y o li e, has been associa ed wi h he indi idual’s ac i e e o s o deal wi h he si ua ion. Adap i e coping, social suppo as well as a combina ion o se e al coping beha io s ha e been ound o be e ec i e [21, 24]. Pa ien s’ in e es in coping is ansla ed in o ac i e pa icipa ion in ca e, which is likely o ha e a posi i e ou come on he inal eco e y ou come [35]. Pa ien s ha e www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 Published by Sciedu P ess 107 been ound o cope, o example, by con inuing li e as no mally as possible, s ep by s ep. I has also been con i med ha inc eased sel -ca e ega ding physical heal h educes pa ien s’ anxie y on pos -ope a i e days [36, 37]. In con as , pa ien s’ eco e y may be complica ed by hei educed li e sa is ac ion and lowe si ua ion-speci ic sel -con ol expec a ions [18]. Family membe s, on he o he hand, ha e been shown o equi e suppo and in o ma ion on how he pa ien should ac o ensu e coping a home [38]. Wi h inc easingly sho hospi al s ays, amily membe s’ end o expec mo e om he hospi al s a [39]. These backg ound ideas, oge he wi h u he li e a u e on pa ien s’ and hei amilies’ coping needs and expe iences, o med a ounda ion o he c ea ion o an ins umen , whose pu pose was o measu e coping and help seek answe s o he ollowing esea ch ques ions. Resea ch ques ions 1) Wha kind o coping esou ces did pa ien s and hei amily membe s ha e a six weeks ollowing su ge y? 2) Which backg ound ac o s we e associa ed wi h pa ien s’ and hei amilies’ coping esou ces a six weeks ollowing su ge y? 3) In wha way we e pa ien s’ and hei amilies’ coping esou ces associa ed wi h hei o e all coping a six weeks ollowing su ge y? 2 Me hod 2.1 Resea ch design This is a c oss-sec ional obse a ional s udy. Da a we e collec ed om 61 adul back su gical pa ien s and 50 amily membe s in one cen al hospi al in Finland. A new li e a u e-based, sel -adminis e ed ins umen was de eloped o his pu pose. In he esul s, pa ien s’ and amily membe s’ esponses o backg ound ques ions and o wel e g oups o ques ions on coping esou ces as well as hei assessmen o hei o e all coping a e combined o analysis. 2.2 Ins umen As no sui able ins umen o pa o ins umen was ound, a new ins umen was de eloped o measu e he coping o pa ien s and amily membe s. This s udy uses wo o he h ee majo pa s o he ins umen s: backg ound ac o s and pa ien s’ and amily membe s’ coping esou ces [40]. In addi ion, pa ien s and amily membe s we e p esen ed wi h a Visual Analogue Scale (VAS), a 10 cen ime e long scale wi h a alue ange o 0-100. The VAS has been used in ea lie esea ch o assess subjec i e expe iences, o example pain, mood, a en ion, sleep quali y, a i ude and abili y o unc ion. In his s udy, he pa ien s and amily membe s we e asked o ma k hei assessmen o hei o e all coping a e su ge y on he scale [41, 42]. In he i s sec ion o he ins umen , backg ound da a we e collec ed by ques ions on he pa ien ’s and amily membe ’s age, sex, ma i al s a us, amily, employmen , social li e and he pa ien ’s illness ha equi ed su gical ea men . These backg ound ac o s we e la e s udied o hei associa ion wi h esponden s’ coping esou ces. The coping esou ces sec ion o he ins umen is based on ea lie esea ch on pa ien s and amilies expe iencing su ge y [18, 26, 37, 43] accessed wi h help o a lib a ian om he da abases Cinahl (102), Cinahlcumula i eindex (174), B i ish Nu sing Index– (14), O idMedline (143), Linda (29) and Medic (15). The li e a u e was sea ched o esul s on pa ien s’ and hei amilies’ coping needs and expe iences. This sec ion o he ins umen is also based on an ea lie pilo s udy conduc ed by he au ho [44]. The ins umen o pa ien s was o mula ed i s and hen modi ied o p oduce an ins umen o amily membe s. www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 ISSN 2324-7940 E-ISSN 2324-7959 108 The ollowing li e a u e-based cons uc s we e o mula ed o he ins umen : pa ien s’ and amily membe s’ a i udes owa ds u u e, pa ien ’s eco e y mo i a ion and ac i i y in sel -ca e, no malcy o daily li e, pa ien ’s and amily membe ’s wellbeing, pa ien ’s mood changes, insecu i y ega ding u u e, de e io a ion o heal h, social isola ion, ea (o losing he pa ien ) and he inc eased complica ions o li e oge he . In his s udy, hese cons uc s a e e e ed o as componen s o coping esou ces. Responden s we e asked o use he Like scale o assess he impo ance o he abo e componen s as cons i uen s o hei coping esou ces, wi h he op ion 1 indica ing he leas and 4 he highes le el o impo ance. The e we e 2-11 ques ions pe componen on he ques ionnai es. Means we e calcula ed pe esponden and pe componen , bu only o componen s in which a minimum o 80% o he i ems had been esponded o. In he assessmen o o e all coping (VAS), sco es abo e 50 we e conside ed o indica e be e o e all coping. 2.3 Validi y and eliabili y Bo h p e- es ing and expe panel consul a ion we e used o ensu e con en alidi y o he ins umen s. The expe panel, which consis ed o h ee membe s wi h expe ise in esea ch, assessed he ace alidi y o each ins umen espec i ely. The expe s we e consul ed o ensu e ha he ins umen con en s and ques ions we e clea and comp ehensible and ha he ime gi en o p ospec i e pa icipan s was adequa e. Following his, bo h ins umen s we e es ed and commen ed on by en heal h ca e p o essionals. The con en alidi y index was 0.88 o he pa ien ins umen and 0.87 o he amily membe ins umen . Bo h alues a e good [45]. A eliabili y assessmen was also conduc ed o de e mine he ex en o which he ins umen measu ed wha i was in ended o measu e and o assess ins umen eliabili y, s abili y and in e nal consis ency [46]. The C onbach alpha sco es anged om 0.43 o 0.90 o pa ien s and om 0.13 o 0.89 o amily membe s. In bo h ins umen s, he ollowing componen s showed poo e consis ency han he o he s: ac i i y in sel ca e (pa ien α = 0.56, amily membe α = 0.13); no malcy o daily li e (pa ien α = 0.67, amily membe α = 0.21) and social isola ion (pa ien α = 0.43, amily membe α = 0.22). Fu he mo e, wo componen s in he amily membe ins umen p o ed o ha e poo in e nal consis ency: a i ude owa ds u u e (α = 0.57) and pa ien ’s and amily membe ’s wellbeing (α = 0.65). The p oblem may be due o he small numbe o ques ions (2-7) wi hin hese componen s. Second, he ime passed since su ge y may ha e esul ed in he pa ly poo in e nal consis ency o he amily membe s’ ins umen , because he pa ien ’s heal h may al eady ha e imp o ed conside ably. The esponden s may ha e el ha he ques ions conce ned amily membe s o pa ien s who a e in a poo e condi ion. The pa allel- o ms me hod could no be used in es ing eliabili y, as no sui able al e na i e ins umen was a ailable. A es - e es analysis was uled ou because he phenomena o be examined we e no expec ed o emain s able o e ime [47]. Finally, he ins umen was p e es ed in a pilo s udy conduc ed by he au ho [40] p io o he p esen s udy wi h pa ien s (N=30) and amily membe s (N=30) selec ed by pa ien s. Fo he pilo s udy, ques ionnai es and co e ing le e s we e handed o pa ien s and amily membe s in one hospi al du ing wo mon hs in 2008 and e u ned, oge he wi h consen o ms, o he in es iga o by pos . The analysis in ol ed a s udy o equencies, dis ibu ions, means, s anda d de ia ions and co ela ion. The e was no need o make amendmen s in he ques ionnai es. Da a om he pilo s udy we e no included in he ma e ial o he p esen s udy. 2.4 Sample The inclusion c i e ia o pa icipan s, bo h pa ien s and amily membe s, included: age 18 o olde , Finnish speaking, awa e o he s udy objec i es and capable o esponding o he ques ionnai e. The pa ien s had ecei ed su gical ea men o disc he nia ion o spinal s enosis and hey had been ca ed o on neu osu gical o o hopaedic wa ds in a cen al hospi al in Finland. The amily membe s we e selec ed and ec ui ed by pa ien s. Na ional s a is ics we e i s s udied o lea n he o al numbe o a ge g oup pa ien s in Finland and a s a is ician was consul ed o help assess how much ime ( wo yea s) would be equi ed o ob ain an adequa e sample. Da a collec ion was ended a e wo yea s. No powe analysis was conduc ed. The da a we e collec ed be ween May 2008 and Augus 2010. The ques ionnai es, along wi h he Visual Analog Scales, we e mailed o p ospec i e pa icipan s. The ini ial a ge g oup consis ed o 126 pa ien s and 126 amily www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 Published by Sciedu P ess 109 membe s, o whom 61 pa ien s ( esponse a e 48%) and 50 amily membe s ( esponse a e 40%) e u ned he ques ionnai e. Table 1. Pa ien and amily membe backg ound da a Backg ound ac o s Pa ien (N=61) Family membe (N=50) N % N % Sex emale 31 51 27 54 male 30 49 23 46 Ma i al s a us single 5 8 3 6 ma ied/cohabi ing 47 77 43 86 di o ced 7 11 3 6 widowed 1 2 1 2 missing da a 1 2 -- -- On ea nings- ela ed/disabili y pension no 43 70 40 80 yes 15 25 6 12 applica ion pending 1 2 1 2 missing da a 2 3 3 6 Unemployed no 49 80 44 88 yes 5 8 3 6 missing da a 7 12 3 6 Family membe s no child en 11 18 9 18 one o mo e child en 24 39 22 44 child en no li ing in he same home 23 38 14 28 missing da a 3 5 5 10 Leng h o sick lea e be o e su ge y ( esponse op ions gi en) 0-3 mon hs 22 36 -- -- >3 mon hs 21 34 -- -- missing da a 18 30 -- -- O he pe sis en disease no 40 66 -- -- yes 20 33 -- -- missing da a 1 1 -- -- Fi s - ime ope a ion no 15 25 -- -- yes 46 75 -- -- (Table 1 con inued on page 110) www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 ISSN 2324-7940 E-ISSN 2324-7959 110 Table 1. (Con inued.) Backg ound ac o s Pa ien (N=61) Family membe (N=50) N % N % Fi s ime as a amily membe o pa ien unde going su ge y no -- -- 28 56 yes -- -- 21 42 missing da a -- -- 1 2 P e ious ope a ions ( esponse op ions gi en) none 13 21 19 38 one o mo e 48 79 29 58 missing da a -- -- 2 4 F ee- ime ac i i ies no ee- ime ac i i ies be o e o a e illness 7 11 -- -- no ee- ime ac i i ies be o e o a e pa ien ’s illness -- -- 7 14 had o s op he ee- ime ac i i ies 21 34 -- -- i egula pu sui o ee- ime ac i i ies a e illness 24 39 -- -- i egula pu sui o ee- ime ac i i ies a e pa ien ’s illness -- -- 21 42 egula ee- ime ac i i ies 6 10 20 40 missing da a 3 5 2 4 One o se e al con idan s no 1 2 5 10 yes 60 98 43 86 Con ac wi h he mos signi ican pe son daily 48 79 31 62 weekly 9 15 16 32 once a mon h 1 1 1 2 missing da a 3 5 2 4 The pa ien s’ mean age was 47.7 yea s ( ange 18-71) and he amily membe s’ 47 yea s ( ange 18-77). As shown in Table 1, a sligh majo i y o esponden s we e women. Mos pa ien s and amily membe s we e ei he ma ied o cohabi ing and had one o mo e child en. In bo h g oups, a small mino i y o esponden s we e unemployed. All he pa ien s had been on sick lea e du ing he pas yea , wi h li le a ia ion in he du a ion o sick lea e. Nea ly one hi d o he pa ien s had been diagnosed wi h ano he ch onic disease. Fo mos pa ien s, his had been hei i s spinal su ge y. A sligh majo i y o amily membe s had p e ious expe ience o being a su gical pa ien ’s amily membe , and in bo h g oups, he majo i y o he esponden s had a his o y o ea lie su gical p ocedu es. One hi d o he pa ien s had been compelled o gi e up hei ee- ime ac i i ies due o hei illness, whe eas amily membe s had con inued o pu sue hei in e es s. Bo h pa ien s and amily membe s had one o se e al con idan s o pe sons o alk o. Mos o hem s ayed in con ac wi h such close pe sons on a daily basis. 2.5 E hical conside a ions The Na ional Ad iso y Boa d on Heal h Ca e E hics p inciples we e obse ed [48]. Pa icipa ion was olun a y and based on in o med consen . The ques ionnai es we e mailed, gi ing each p ospec i e pa icipan ull eedom o decide whe he o no o en e he s udy. All pa icipan s we e legally compe en adul s. Tampe e Uni e si y Hospi al E hical Commi ee www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 Published by Sciedu P ess 111 pe mission (R07165H) and hospi al pe mission o conduc esea ch we e ob ained and he anonymi y o he esponden s ensu ed. 2.6 Da a analysis The S a is ical Packages o Social Sciences (SPSS) 18.0 o Windows was used o s a is ical analysis. Whe e needed, i em sco es we e e e sed o make he alues di ec ionally consis en [49]. To help desc ibe da a and o u he analysis, bo h pa ien s and amily membe s we e g ouped in o wo ca ego ies o almos equal size: he unde 45-yea -olds and hose 45 o olde . The esponses o i ems on esponden s’ coping esou ces we e sco ed as ollows: s ongly disag ee =1 poin , disag ee =2 poin s, ag ee =3 poin s and s ongly ag ee = 4 poin s. The esul s a e p esen ed using equencies, pe cen ages, ange, means and medians. Since he da a we e no no mally dis ibu ed, non-pa ame ic s a is ical me hods (Mann-Whi ney and K uskal-Wallis Tes s) we e used o assess ela ionships be ween a iables [49]. Spea man’s co ela ion was also conduc ed o analyse he associa ion be ween he g oups o ques ions and assessmen o o e all coping. A co ela ion was de e mined o be signi ican i he P- alue was below .05. Because o he limi ed sample size, missing da a has no been complemen ed o eplaced o example by means du ing he analysis. Table 2. Pa ien s’ and amily membe s’ expe iences o he componen s o coping esou ces Componen s o coping esou ces Pa ien Numbe Median Q= Q1-Q3 Family membe numbe Median Q= Q1-Q3 A i ude owa ds u u e 60 3.50 3.00-3.80 50 3.33 3.00-3.53 Pa ien ’s eco e y mo i a ion 60 3.75 3.06-4.00 48 4.00 3.50-4.00 Ac i i y in sel -ca e 56 3.25 2.81-3.75 46 2.88 2.50-3.00 No malcy o daily li e 58 3.50 2.50-4.00 50 4.00 3.50-4.00 Pa ien ’s and amily membe ’s well-being 59 3.00 2.71-3.57 50 3.21 2.82-3.71 Sha ed us in nu sing s a 57 3.67 3.33-4.00 48 4.00 3.42-4.00 Pa ien ’s mood changes 59 1.82 1.27-2.27 50 1.67 1.22-2.14 Insecu i y ega ding u u e * 52 1.83 1.00-3.00 44 2.17 1.00-3.00 De e io a ion o heal h * 59 2.40 1.70-2.90 50 1.94 1.50-2.72 Social isola ion * 58 2.25 1.50-3.00 49 1.50 1.00-2.50 Fea (o losing he pa ien ) 58 3.50 3.38-4.00 49 3.50 3.50-4.00 Inc eased complica ions o li e oge he 59 1.63 1.25-2.13 49 1.71 1.14-2.14 (Scale 1-4, 4= s ongly ag ee, 3= ag ee, 2=disag ee, 1= s ongly disag ee). * Re e se o de ing wi h low alues indica ing posi i e meaning 3 Resul s 3.1 Pa ien s’ and amily membe s’ coping esou ces As shown in Table 2, i was ound ha acco ding o pa ien s, he mos posi i e componen s o hei coping esou ces we e eco e y mo i a ion, no malcy o daily li e and esponden s’ sha ed us in nu sing s a . Fea was ound o deple e coping esou ces. Inc eased complica ions o li e oge he and changes in he pa ien ’s mood, howe e , we e no conside ed o ha e any majo con ibu ion. Simila ly, amily membe s also ega ded pa ien ’s eco e y mo i a ion, no malcy o daily li e and sha ed us in nu sing s a as hei mos posi i e coping esou ces. They ound ha hei ea o losing he pa ien dec eased hei coping esou ces, whe eas social isola ion due o he pa ien ’s illness, he pa ien ’s mood changes, www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 ISSN 2324-7940 E-ISSN 2324-7959 112 inc eased complica ions o li e oge he and he de e io a ion o he pa ien ’s heal h did no a ec hei coping esou ces signi ican ly. 3.2 Backg ound ac o s ela ed o pa ien s’ and amily membe s’ coping esou ces Compa ison by ma i al s a us e ealed ha pa ien s who we e sepa a ed o di o ced expe ienced mo e o en ha inc eased complica ions o li e oge he had a ec ed hei coping nega i ely (p- alue o he di e ence .028). In compa ison, he median o unma ied pa ien s was 2.50, o ma ied o cohabi ing pa ien s 1.50 and o widowed pe sons 2.86, so he e was a signi ican di e ence be ween he g oups. Rega dless o hei educa ional backg ound, amily membe s expe ienced ha hei a i ude owa ds u u e had been a posi i e con ibu ion o hei coping esou ces. The di e ences be ween educa ional g oups we e p ac ically a he small; he median o amily membe s wi hou any oca ional quali ica ion was 3.00, whe eas i was 3.25 o hose wi h uppe seconda y le el educa ion, 3.60 o hose wi h a deg ee o diploma om a uni e si y o applied sciences o college and 3.33 o uni e si y g adua es (p=.039). In o he wo ds, hose wi h a ela i ely high educa ion had he highes sco e. No majo di e ences we e ound be ween educa ional g oups in amily membe s conce ning hei a ing o he pa ien ’s sel -ca e ac i i y as a coping esou ce. The median was 2.50 o amily membe s wi hou a oca ional quali ica ion, 2.75 o hose wi h uppe seconda y le el educa ion, 3.00 o uni e si y o applied sciences o college g adua es and 2.50 o amily membe s wi h a uni e si y deg ee (p= .049). Again, hose wi h mo e educa ion, excep ing he mos highly educa ed g oup, ound his componen sligh ly mo e impo an o hei coping han o he esponden s. I was ound ha in pa ien s wi h an applica ion pending o ea nings- ela ed o disabili y pension, insecu i y ega ding u u e had a s onge nega i e con ibu ion o hei coping esou ces han in o he g oups. Responden s wi h an applica ion pending had a median o 4.00, whe eas hose in wo king li e had a median o 1.33 (p=.023) and hose al eady pensioned a median o 3.00. In amily membe s, esponden s on ea nings- ela ed o disabili y pension el mo e s ongly (median 3.33) ha hei insecu i y o u u e had con ibu ed o hei coping esou ces nega i ely han o he g oups. Wo king amily membe s had a median o 1.67 (p= .019) and amily membe s wi h an applica ion pending a median o 2.68. A signi ican associa ion was ound be ween pa ien s’ employmen s a us and insecu i y ega ding u u e as a componen a ec ing coping esou ces. The median o employed people was 1.33, whe eas i was 3.00 o unemployed pa ien s (p= .027). Wo king pa ien s expe ienced u u e as mo e secu e han unemployed pa ien s. Fu he mo e, he unemployed esponden s el sligh ly mo e s ongly ha hei social isola ion had had a nega i e con ibu ion o hei coping esou ces. This associa ion be ween pa ien s’ employmen s a us and social isola ion was s a is ically almos signi ican , wi h he median o 2.00 o wo king and 3.00 o unemployed pa ien s (p= .045). I espec i e o he numbe o ea lie ope a ions, pa ien s ega ded hei eco e y mo i a ion as a posi i e componen o hei coping esou ces. The eco e y mo i a ion was mo e p onounced in he esponses o hose pa ien s, who had had i s - ime su ge y o hei condi ion compa ed o pa ien s, who had ea lie expe ience o su ge y. The median o he i s - ime su ge y g oup was 4.00 and o he la e g oup 3.13 (p=.012). As ega ds pa ien s’ a i ude owa ds u u e, hose who had had i s - ime su ge y el mo e s ongly ha hei a i ude had posi i ely a ec ed hei coping esou ces (median 3.50), compa ed o pa ien s wi h ea lie expe ience o su ge y (median 3.00; p= .013). As o pa ien s’ de e io a ion o heal h, i was ound o a ec coping esou ces nega i ely, i espec i e o he amoun o ea lie su gical expe ience. The i s - ime su ge y pa ien s el his less s ongly. Thei median was 2.25, whe eas hose wi h p e ious expe ience o su ge y had a median o 2.89 (p=.020). The eco e y mo i a ion median o pa ien s who we e 45 o olde was 3.50, while i was 4.00 (p= .019) o unde 45-yea -old pa ien s. This is p ac ically no a e y signi ican di e ence, bu i indica es ha he eco e y mo i a ion o www.sciedup ess.com/cns Clinical Nu sing S udies, 2014, Vol. 2, No. 2 Published by Sciedu P ess 113 unde 45-yea -old pa ien s was a sligh ly s onge posi i e componen o hei coping esou ces. Opposi e esul s we e ob ained o sha ed us in nu sing s a ; he olde age g oup a ed hei expe iences mo e posi i ely wi h a median o 4.00, whe eas he unde 45-yea -old pa ien s had a median o 3.33 (p= .020). The unde -45-yea -old amily membe s a ed hei u u e as sligh ly less insecu e (median 1.67) han he olde age g oup, whose median was 2.67 (p=.043). 3.3 Associa ion be ween pa ien s’ and amily membe s’ coping esou ces and o e all coping Pa ien s’ coping a six weeks ollowing su ge y was also assessed by s udying he associa ion be ween he VAS o e all assessmen and he means calcula ed o each componen . Table 3. Co ela ion s udy (Spea man’s co ela ion) on he ela ionship be ween componen means and pa ien s’ and amily membe s’ o e all assessmen o pos ope a i e coping Componen s o coping esou ces N Co ela ion P- alue Pa ien Family membe Pa ien Family membe Pa ien Family membe A i ude owa ds u u e 60 50 .681 .313 .000 .027 Pa ien ’s eco e y mo i a ion 60 48 .716 .309 .000 .032 Ac i i y in sel -ca e 56 46 .292 .000 .029 .999 No malcy o daily li e 58 50 .595 .450 .000 .001 Pa ien ’s and amily membe ’s wellbeing 58 50 .569 .188 .000 .191 Sha ed us in nu sing s a 57 48 .330 .167 .012 .256 Pa ien ’s mood changes 59 50 -.720 -.514 .000 .000 Insecu i y ega ding u u e 52 44 -.536 -.122 .000 .430 De e io a ion o heal h 59 50 -.739 -.413 .000 .003 Social isola ion 58 49 -.677 -.540 .000 .000 Fea (o losing he pa ien ) 58 49 .295 .156 .024 .283 Inc eased complica ions o li e oge he 59 49 -.617 -.350 .000 .014 In Table 3 s a is ically signi ican esul s (p<.05) a e highligh ed in bold. The able shows how Spea man’s co ela ion e ealed some s a is ically signi ican and meaning ul di e ences. The pa ien s who epo ed poo e mood, mo e insecu e u u e, de e io a ed heal h, social isola ion and inc eased complica ions o li e oge he , also a ed hei o e all coping a six weeks ollowing he su ge y as poo e han pa ien s wi h opposi e expe iences. In con as , pa ien s wi h a mo e posi i e a i ude owa ds u u e, highe eco e y mo i a ion, expe ienced no malcy o daily li e and sha ed wellbeing, a ed hei o e all coping as highe a six weeks a e he su ge y. Family membe s’ assessmen o coping was s udied by he same me hod as ha o pa ien s. The analysis yielded s a is ically pa ly signi ican and meaning ul di e ences. Mos no ably, hose amily membe s, who epo ed pa ien ’s changeable moods and hei own social isola ion, a ed hei o e all coping as poo e a six weeks ollowing he pa ien ’s su ge y. 4 Discussion Changes in amily ela ions o in pa ien s’ abili y o cope a home a e e lec ed on he whole amily’s coping esou ces [9]. In he p esen s udy, his associa ion was de e mined in bo h pa ien s and amily membe s; bo h el ha he pa ien ’s eco e y mo i a ion, no malcy o daily li e and hei sha ed us in nu sing s a cons i u ed s eng hening and posi i e coping esou ces. Acco ding o Salmenpe ä e al. [9] pa ien s’ mood a ec s hei coping in daily li e. The p esen s udy had di e en esul s; bo h pa ien s and amily membe s a ed he ole o pa ien ’s mood changes as insigni ican a six weeks