2023 ANNUAL IMPACT REPORT
ACCELERATING SCIENCE, IMPROVING HEALTHCARE FOR ALL
ON THE FRONT COVER a e ep esen a i es om F on ie s and i s pa ne s. Le o igh , hey a e:
Back Row: S e e Leede , F on ie s Co-Di ec o ; Ch is Wilson, The Uni e si y o Kansas Heal h Sys em;
Ga old Minns, Uni e si y o Kansas School o Medicine-Wichi a; Robe Sima i, Uni e si y o Kansas Medical Cen e ;
Tom Cu an, Child en’s Me cy Kansas Ci y; Robe Whi e, Kansas Ci y Uni e si y; Ma io Cas o, F on ie s Co-Di ec o
F on Row: Ma yAnne Jackson, Uni e si y o Missou i-Kansas Ci y; Donna Buchanan, Sain Luke’s Heal h Sys em;
F ank Blecha, Kansas S a e Uni e si y; Ed O’Conno , Kansas Ci y Uni e si y.
4 Welcome om he Co-Di ec o s
5 Resou ces and Se ices
6 By he Numbe s
8 Pa ne s
10 Pilo P og ams
14 Ea ly Ca ee Facul y
De elopmen P og am
15 P edoc o al and Pos doc o al
T aining P og am
16 T ainee Highligh s
17 T aining Oppo uni ies
18 E en Highligh s
19 Accomplishmen s
20 Communi y Engagemen
21 Inc easing Wo k o ce Di e si y
Join us in ou mission o ad ance
science and imp o e heal hca e o all
by becoming a membe .
on ie sc si.o g/become-a-membe
Table o
Con en s
As Co-Di ec o s, we a e pleased o p esen he
F on ie s Clinical and T ansla ional Science Ins i u e
epo o he 2023 iscal yea .
He e, we highligh he collabo a i e wo k o many people ac oss ou ne wo k o academic ins i u ions,
heal hca e sys ems and communi y and pa ien ad ocacy g oups. We a e ully engaged wi h ou pa ne s in clinical
and ansla ional science inno a ions ha imp o e heal h and heal hca e o all.
We encou age you o lea n abou ou many endea o s and accomplishmen s, such as unding nea ly 300 esea ch
p ojec s, building nume ous collabo a ions among scien is s, pa ien s and communi y o ganiza ions, aining
mul iple K and T schola s and aiding in he design, implemen a ion and communica ion o a wide ange o esea ch
p ojec s since 2011.
In closing, we hank he acul y and s a who lead, suppo and con ibu e i eless wo k and dedica ion o F on ie s,
wi h he aim o ad ancing clinical and ansla ional science. We look o wa d o con inuing o de elop inno a i e
esou ces and se ices o suppo ou clinical and ansla ional wo k o ce and imp o e he heal h o ou communi ies.
Ma io Cas o, M.D., MPH
Co-P incipal In es iga o and Di ec o
S e e Leede , Pha mD, Ph.D.
Co-P incipal In es iga o and Di ec o
Wa ch ou
in oduc ion ideo
bi .ly/ on ie sin o
4 | F on ie s Clinical & T ansla ional Science Ins i u e
Se ices and Resou ces
F on ie s se ices a e o ganized in o i e ini ia i es o suppo ou mission o
ad ance science and imp o e heal hca e o all.
1. Resea ch Design
and Analysis
• Genomics
• In o ma ics
• S a is ical Analysis
and Planning
• Da a Managemen
• Implemen a ion Science
2. Resea ch Suppo
• Science Communica ion
• Regula o y Knowledge
and Supppo
• D ug, Diagnos ic and
Medical De ice De elopmen
• E alua ion and Impac
• Budge ing and Finance
3. Clinical Resea ch Facili ies
and Resou ces
• Clinical and T ansla ional
Science Uni s (CTSUs)
• Ne wo king and Rec ui men
• In eg a ing Special Popula ions
• Heal hca e In eg a ion
• Wo k o ce De elopmen
4. Educa ion, T aining
and Funding
• Ea ly Ca ee Facul y Ca ee De elopmen
(KL2 Awa ds)
• P e- and Pos doc o al Ca ee De elopmen
(TL1 Awa ds)
• Pilo Awa ds
5. Communi y and Collabo a ion
• Team Science
• Communi y Engagemen
Reques a
Se ice Consul a ion
bi .ly/3PoU02C
ACCELERATING
SCIENCE,
IMPROVING
HEALTHCARE
FOR ALL
Ou se ices a e led by acul y om ou pa ne ins i u ions and a e suppo ed by Na iga o s
se ing as p ima y poin s o con ac .
F on ie s elies on he e o o o e 90 acul y and s a o p o ide ou many esou ces and se ices.
F on ie s made s uc u al changes o maximize ou sha ed leade ship model, including eb anding ou logos and
websi e o be mo e inclusi e ac oss ou ins i u ional pa ne s.
2023 Annual Repo | 5
By he Numbe s
350+
se ice consul a ions
deli e ed since June 2022
Membe s' Ca ee S ages
83 Expe ienced In es iga o s (23%)
131 New In es iga o s (36%)
19 Pos doc o al In es iga o s (5%)
21 G adua e S uden T ainees (6%)
5 Residen o Fellows (1%)
10 Medical S uden
T ainees (3%)
2 Unde g adua e
S uden s (<1%)
97 O he (26%)
Membe s by Ins i u ion
208
Uni e si y o Kansas Medical Cen e (46%)
81 Child en’s Me cy Kansas Ci y (18%)
40 The Uni e si y o Missou i - Kansas Ci y (9%)
27 Uni e si y o Kansas Medical Cen e - Wichi a (6%)
26 The Uni e si y o Kansas (6%)
21 The Uni e si y o Kansas Heal h Sys em (5%)
16 Kansas Ci y Uni e si y (3%)
10 O he (2%)
7 Kansas S a e Uni e si y (2%)
6 Sain Luke's Heal h Sys em (1%)
5 Communi y O ganiza ions (1%)
4 Uni e si y o Kansas Medical Cen e - Salina (1%)
2 P i a e Indus y (<1%)
90+ acul y and s a
p o iding se ices and esou ces o ou membe s
420+
membe s
egis e ed as o June 2023
6 | F on ie s Clinical & T ansla ional Science Ins i u e
539 publica ions
a ibu ed o F on ie s suppo since 2011
520+
ac i e s udies
a CTSUs in g an yea 2023
Membe s' Resea ch A eas
57 Basic Resea ch (14%)
30 P e-Clinical Resea ch (7%)
162 Clinical Resea ch (39%)
43 Implemen a ion
Resea ch (10%)
53 Popula ion-Based
Resea ch (13%)
71 Non-Resea ch S a and
Communi y Pa ne s (17%)
4,000+ a endees
a F on ie s hos ed e en s in g an yea 2023
7,900+
pa icipan isi s
ac oss all i e Clinical T ial Se ice Uni s (CTSUs)
du ing g an yea 2023
145 e en s
hos ed by F on ie s in g an yea 2023
Th oughou he pas yea , F on ie s has con inued
o build i s ne wo k. He e a e a ew highligh s o he
accomplishmen s F on ie s has achie ed.
2023 Annual Repo | 7
Pa ne s
Regional
We a e unded om a $27 million g an om he Na ional Ins i u e o
Heal h’s Na ional Cen e o Ad ancing T ansla ional Sciences.
Pa ne s con ibu e $10 million in cos -sha e unds o he g an .
Ou eigh academic and heal hca e deli e y ins i u ions se e
he en i e s a e o Kansas and wes e n Missou i.
Geog aphic Co e age
This map ep esen s he e i o y
ha he F on ie s p og am
co e s in ela ion o Clinical and
T ansla ional Science Awa d (CTSA)
p og ams in he No heas
(17 CTSA p og ams).
Kansas
Missou i
8 | F on ie s Clinical & T ansla ional Science Ins i u e
Na ional Impac
As pa o he Na ional Cen e o Ad ancing
T ansla ional Sciences (NCATS) CTSA p og am,
F on ie s in es iga o s ha e he oppo uni y o
collabo a e wi h in es iga o s om o he CTSA
p og ams. Below a e he ins i u ions F on ie s
in es iga o s ha e collabo a ed wi h o e he
pas g an yea .
Lea n why ou pa ne s
choose o suppo ou mission
bi .ly/ on ie spa ne s
Uni e si y o Iowa
Uni e si y o
Ken ucky
Uni e si y o A kansas
o Medical Sciences
Duke Uni e si y
Michigan Ins i u e
o Clinical and
Heal h Resea ch
Geo ge own
Uni e si y
A izona S a e
Uni e si y
The Pennsyl ania
S a e Uni e si y
Uni e si y o New
Mexico Heal h
Sciences Cen e
Indiana Uni e si y
Uni e si y o U ah
Heal h
De eloping S ay Con e sa ions
CORES Conso ium o Ru al S a es
Genomics S akeholde P ojec
De eloping a CTSA Resea ch
Ne wo k o Suppo T ansla ional
Science Ac oss he C iminal
Jus ice Con inuum
E alua ing sleep dis u bances
in adolescen s and young adul s
wi h in ellec ual and
de elopmen al disabili ies
2023 Annual Repo | 9
T ainee Highligh s
82
F on ie s T ainees and Schola s
since 2011
34
P edoc o al Schola s (TL1)
17
Pos doc o al Schola s (TL1)
31
Ea ly Ca ee Schola s (KL2)
Top Pos e winne ACTS 2023
Jada Ohene Agyei, TL1 T ainee om he
Uni e si y o Missou i-Kansas Ci y, was
awa ded Top Pos e a he Associa ion o
Clinical and T ansla ional Sciences 2023
con e ence.
776+
o al publica ions
om all K & T P og am Schola s
since 2011
Ou p e ious ainees ha e gone
on o o he ins i u ions a ound he
na ion, including:
Uni e si y o Washing on
Uni e si y o Ne ada-Las Vegas
Uni e si y o Ken ucky
Uni e si y o Chicago
Uni e si y o Colo ado-Boulde
Child en’s Hospi al o Philadelphia
Loyola Medicine
as well as p i a e clinical p ac ice
and p i a e indus y
96%
o F on ie s Schola s
(K & T p og am) ha e secu ed
independen unding since he
conclusion o hei aining
16 | F on ie s Clinical & T ansla ional Science Ins i u e
T aining Oppo uni ies
Mock S udy Sec ions
Twice a yea , F on ie s holds a Mock S udy Sec ion
(MSS). The MSS simula es an NIH s udy sec ion,
e iewing K and R g an s submi ed by acul y om
ou pa ne ins i u ions. Pa icipan s ecei e aluable
eedback om in hei ields; no only inc easing
p obabili y o unding, bu also os e ing collabo a ion
and esou ce sha ing.
Team Science T aining
Wo kshop
In May o 2023, ou Team Science g oup b ough in expe
and Ex e nal Ad iso y Boa d membe , Jeni C oss, Ph.D.
o lead ou g oup in Team Science T aining. In a endance we e
19 pa icipan s om ou pa ne ins i u ions.
High School Summe T aining in
Academic Resea ch:
STAR 2.0 P og am
The STAR 2.0 P og am p o ides a hands on, high quali y esea ch expe ience
du ing he summe academic b eak o high school s uden s and educa o s.
Du ing he p og am, pa icipan s ge he chance o:
• Wo k wi h a Child en’s Me cy Kansas Ci y acul y on an
o iginal esea ch p ojec .
• De elop a esea ch publica ion o submission o a
pee e iewed jou nal.
• Lea n abou clinical and ansla ional esea ch me hodology,
w i ing, s a is ics, medical e hics and ca ee de elopmen .
• Ne wo k and lea n wi h o he s uden s/educa o s.
This summe , ou In o ma ics eam hos ed i e in e ns.
Ou p og am manage also augh a scien i ic w i ing cou se o all ainees.
Mock S udy Sec ion
STAR 2.0 P og am
2023 Annual Repo | 17
E en Highligh s
Resea ch Symposium
G an Renewal Celeb a ion
G an Renewal Celeb a ion
Hos ed a he Wo ld Wa 1 Museum and Memo ial,
he enewal celeb a ion ea u ed
speake s om all pa ne ins i u ions,
ne wo king oppo uni ies and ou s
o he Museum and Memo ial.
View e en highligh s:
bi .ly/2023g an enewal
Resea ch Symposium
F on ie s hos ed a hyb id Resea ch Symposium
on Communica ing Science in he Communi y o
app oxima ely 160 in es iga o s, communi y membe s
and esea ch s a . Speake s om ac oss he coun y
p esen ed bes p ac ices on esea ch o communi ies.
The Symposium also included o al p esen a ions and
pos e sessions ea u ing Pilo
Awa dees, Ea ly Ca ee Facul y
and P edoc o al and Pos doc o al
ainees in he TL1 p og am.
View e en highligh s:
bi .ly/2023 esea chday
Resea ch and Disco e y
G and Rounds
Topics his yea included:
• Men o ship
• Team Science
• Communi y Engagemen
• Pa ien Repo ed Ou comes
• Pilo Funding Oppo uni ies
• Scien i ic Wo k o ce Di e si y
View pas semina s:
bi .ly/RDGRlis
18 | F on ie s Clinical & T ansla ional Science Ins i u e
Clinical and T ansla ional Science
Uni s Expansion
We added KUMC Swope o ou Clinical T ial Se ice Uni s his yea . This new
si e p o ides 1,000 sq. . o clinical space, including an addi ional exam oom,
wo lex ooms and in usions space. I also adds adminis a i e s a . Loca ed
in a p edomina ely Black communi y, his si e expands F on ie s’ esea che s
access o esea ch se ices and educa ion o Kansas Ci ians ha ha e been
unde ep esen ed and his o ically excluded in clinical esea ch.
Ins i u e o Ad ancing
Medical Inno a ion
The Ins i u e o Ad ancing Medical Inno a ion ecen ly collabo a ed wi h a pha maceu ical company (CicloMed
LLC) o wo k on d ug de elopmen o cance ea men . Thei s udies in es iga ed a d ug’s sa e y and dosage
in bladde cance pa ien s. Based on posi i e esul s om hese ials, addi ional unding has been applied o o
con inue s udying he d ug’s e ec in addi ional pa ien s wi h bladde cance .
Clinical T ial Finde Applica ion
The Uni e si y o Kansas Medical Cen e Da a Science eam
has de eloped an app ha allows pa ien s and hei physicians o easily
b owse h ough ac i e ials wi hin he F on ie s ne wo k by e ie ing
ial in o ma ion om he clinical ial managemen sys em. Cu en ly
Clinical T ial Finde accesses cance , pulmona y c i ical ca e and
neu omuscula ials.
Genomics 10x Symposium
Ou Genomics co e hos ed a symposium in Decembe 2022 o expand access and awa eness o ad anced genomics
echnologies among he b oade ansla ional esea ch communi y. The symposium ea u ed 10x Genomics,
an indus y leade in single cell and spa ial sequencing. P esen a ions we e also deli e ed by in es iga o s a
Child en’s Me cy Kansas Ci y, KUMC and UMKC. O e 68 a endees pa icipa ed in he e en .
Imp o ed Su ey Accessibili y
In o ma ics has de eloped and implemen ed wo use - iendly ools:
Accomplishmen s
MyCap
A mobile- iendly in eg a ion o RedCap (Resea ch and Da a
Cap u e P ocess) o ms. MyCap allows s udy pa icipan s
o answe su eys om hei phones, acili ing e icien da a
collec ion o bo h esea che s and pa icipan s.
Geoma ke
A sel -se ice po al ha allows esea che s
o eco d pa ien s’ add esses, an impo an
social de e minan o heal h, in a secu e,
p i a e manne .
Pa ien a he new CTSU a
KUMC Swope
F on ie s Clinical T ial Finde App
2023 Annual Repo | 19
Communi y Engagemen
JUNTOS
JUNTOS (Spanish o “ oge he ”) is a cen e ocused on building communi y-academic pa ne ships o imp o e he
heal h o La inos. F om a sus ained base o au hen ic ela ionships in La ino communi ies, JUNTOS ad ances heal h
h ough alliances in esea ch, se ice and educa ion in a cul u ally ele an way.
Mul idisciplina y Ad oca es and Resea ch G oup (MARG)
The Mul idisciplina y Ad oca es and Resea ch G oup (MARG) is a mix o communi y engaged esea che s and
communi y membe ad oca es wo king o os e communi y engagemen in p ojec s. In mon hly mee ings, he
MARG discusses bes p ac ices and p o ides ad ice o in es iga o s and hei communi y pa ne s. The MARG also
mee s in pe son a e hou s o ne wo king e en s o connec communi y and in es iga o s ac oss disciplines.
Inno a ions in Quali y Fo ums
(IQ Fo ums)
Ini ia ed in 2017 as he Kansas Ci y Quali y and Value Inno a ion Conso ium
(KC QVIC), hei wo k began wi h discussions among heal hca e leade s
ha esul ed in ac i e, mul i-s akeholde collabo a ions ocused on
add essing challenges impac ing he e ec i eness, cos and equi y o
heal hca e o he egion. Since hen, he e ha e been 50+ Inno a ions
in Quali y Fo ums ha ha e p o ided he egional heal hca e communi y
a place o exchange ideas ocused on imp o ing he quali y and alue
o heal hca e o Kansas Ci y o o e 3,000 a endees. Topics ha e included he ole o da a in he e olu ion o
heal hca e, add essing holes in socie y’s sa e y ne s, ma e nal heal h and mo ali y, ca egi ing ends, bu dens
and b eak h oughs, long haul co id and u al heal h models and inno a ions.
These collabo a ions, and he quali y imp o emen p ojec s ha hey launched, g ew a a pace ha equi ed
in es men in in as uc u e. Recognizing he alue o hese e o s and hei need o obus in as uc u e,
he Uni e si y o Missou i Sys em leade ship awa ded he KC QVIC “ins i u e” s a us unde he
Uni e si y o Missou i – Kansas Ci y, hus c ea ing he Heal hca e Ins i u e o Inno a ions in Quali y in 2021.
1,200+
Co id-19 accines deli e ed
550
Co id-19 es s adminis e ed
3,300
people eached 42
accina ion clinics in
low accine a e communi ies
Inno a ions in Quali y Fo um
20 | F on ie s Clinical & T ansla ional Science Ins i u e
4.7%
o ou membe s iden i y as ha ing a
physical o men al impai men as de ined by he ADA
6.6%
o ou membe s iden i y as
pa o he LGBTQ+ communi y
Inc easing Wo k o ce Di e si y
Di e se wo kplaces c ea e mo e inno a i e and e ec i e in e en ions o ou en i e popula ion. F on ie s ad oca es
and acili a es he ec ui men , e en ion and o e all success o a di e se wo k o ce ac oss all pa ne ins i u ions.
Building an inclusi e en i onmen whe e di e si y is alued as an essen ial asse o gene a ing knowledge
ha mos bene i s he di e se popula ions ha we se e, like he e o s made h ough JUNTOS, is a key ace
o F on ie s wo k.
20.3%
o membe s come om a
NIH disad an aged backg ound
5.2%
o membe s iden i y as
Hispanic/La ino
25%
o ou ainees and
13.8%
o membe s a e om acial o
e hnic backg ounds ha a e
unde ep esen ed in medicine
and esea ch, compa ed o he
na ional a e age o 13% o
medical school acul y in
medicine and STEM acco ding
o he Ame ican Associa ion o
Medical Colleges.
Racial and E hnic
Makeup
o F on ie s
Membe ship
11 Ame ican Indian o
Alaska Na i e (2%)
58 Asian (15%)
32 Black o A ican
Ame ican (8%)
2 Na i e Hawaiian o
O he Paci ic Islande
(<1%)
264 Whi e (68%)
7 Di e en Iden i y (2%)
14 P e e no o say (3%)
1 in 5
o ou ainees come om
disad an aged socioeconomic backg ounds
as de ined by NIH
64%
o ou ainees and
60.1%
o ou membe s
iden i y as
emale
2023 Annual Repo | 21
Ci e Ou G an
Resea ch epo ed in his publica ion was suppo ed by he
Na ional Cen e o Ad ancing T ansla ional Sciences o he Na ional
Ins i u es o Heal h unde he Awa d Numbe s UL1TR002366,
KL2TR002367 and TL1TR002368. The con en is solely he esponsibili y
o he au ho s and does no necessa ily ep esen he o icial iews o he
Na ional Ins i u es o Heal h.
Become a
F on ie s Membe !
Open o all clinical and ansla ional in es iga o s
and s a membe s a ou pa ne ins i u ions.
Membe ship is ee and en i les you access o
all he esou ces, unding and e en s ha
F on ie s has o o e .
on ie sc si.o g/become-a-membe
Al eady a Membe ?
Reques a se ice consul a ion.
bi .ly/3PoU02C
22 | F on ie s Clinical & T ansla ional Science Ins i u e
Con ac Us
913-588-6290
on ie s-in [email protected]
on ie sc si.o g
4330 Shawnee Mission Pa kway, Sui e 3220
Mail S op 7003
Fai way, Kansas 66205
Accele a ing Science,
Imp o ing Heal hca e o All
@ on ie sc si7926@F on ie sCTSI @F on ie sCTSI
F on ie s CTSI
