h ps://doi.o g/10.5281/zenodo.17708638
Wha we will explo e oday
•How ELIXIR esou ces suppo good da a managemen
planning p ac ice
•Key conside a ions when wo king wi h heal h and
sensi i e da a
•Se en a eas ha help you plan you p ojec e ec i ely
•Take-home poin e s o applying Da a Managemen
Plans
The ELIXIR esou ces we will ocus on oday
●P o ide p ac ical, domain- es ed guidance o complex heal h and li e sciences da a
●Wo k o di e en backg ounds (da a managemen , clinical, echnical, policy, e hics)
●Connec FAIR, go e nance and good esea ch p ac ice
●Reduce guesswo k h ough clea , s uc u ed s eps
●Suppo alignmen ac oss eams and ins i u ions
ELIXIR esou ces o e p ac ical, well- es ed suppo o wo king wi h complex heal h da a
●RDMki explains wha good p ac ice looks like and has many ips and icks
●Da a S ewa dship Wiza d helps you decide how o apply i in you p ojec , wi h lo s o use ul guidance pe
ques ion
The images on he nex slides a e aken om he ELIXIR RDM guidelines page. Please isi his pages o he
esou ces and use jou neys po ayed, including links
A ea 4: Da e use es ic ions
●Wha : Condi ions ha apply o using, eusing o sha ing da a, including consen scope, da a use
on ology (DUO) codes, ins i u ional ules and pe mi ed-use ca ego ies
●Why: Clea es ic ions p e en misuse, ensu e compliance and de ine wha is allowed in seconda y
use p ojec s
●How:
○Iden i y consen limi a ions o pe mi ed-use ca ego ies
○Cla i y da a use ag eemen s, da a ans e ules and go e nance cons ain s
○Reco d all es ic ions ea ly so hey guide p ocessing, sha ing and publica ion
●Links ( om RDMki ):
○E hical aspec s → How o na iga e e hical cons ain s
○Human da a → Wha consen and use limi a ions apply
○Licensing → Which condi ions go e n euse
A ea 5: Me ada a and documen a ion
●Wha : Desc ibing da a in a s uc u ed, consis en way so hey can be unde s ood and eused by o he s
(and by you la e on)
●Why: Good me ada a educes ambigui y, imp o es in eg a ion and suppo s quali y and ep oducibili y
●How:
○Cap u e desc ip i e, s uc u al and adminis a i e me ada a a he momen o collec ion
○Use empla es and con olled e ms o keep documen a ion consis en
○Main ain e sioning and eco d changes o e ime
●Links ( om RDMki ):
○Documen a ion and me ada a → How o documen da a e ec i ely
○Da a o ganisa ion → How o s uc u e and name da a consis en ly
○Da a p o enance → How o eco d p ocessing con ex
○Da a quali y →How o ensu e comple eness and accu acy
A ea 6: S anda ds, on ologies, wo k lows and p o enance
●Wha : Using common o ma s, e minologies and wo k lows o ensu e in e ope abili y and aceabili y
ac oss sys ems and da ase s
●Why: Consis en s anda ds and eco ded p o enance make in eg a ion, au oma ion and ep oducibili y
possible
●How:
○Adop exis ing s anda ds, encodings and on ologies whe e possible
○Use s uc u ed wo k lows and eco d e e y p ocessing s ep
○Cap u e p o enance so esul s a e in e p e able and epea able
●Links ( om RDMki ):
○Documen a ion and me ada a → How o align o ma s and e minologies
○Da a p o enance → How o ack p ocessing s eps
○Tool assembly → How ools i oge he in wo k lows
○Machine ac ionabili y → How o suppo au oma ion
A ea 7: Access models and da a sha ing
●Wha : Deciding how da a will be sha ed o made a ailable unde which condi ions
●Why: Clea access models suppo anspa ency, enable collabo a ion and ensu e law ul and
e hical da a use
●How:
○De ine who can access which da a and unde wha condi ions
○Selec app op ia e access ou es (open, es ic ed, closed)
○Ensu e ha me ada a emain indable e en when da a canno be open
●Links ( om RDMki ):
○Da a publica ion → How o make ou pu s disco e able
○Da a sensi i i y → How access es ic ions a e applied
○Licensing → Wha e ms acili a e sha ing and euse
Key messages o ake home
•Plan be o e you s a : A DMP helps you make in o med decisions
o heal h and sensi i e da a
•Build on wha al eady exis s: Reusing da a, empla es and s anda ds
sa es e o and imp o es quali y
•Be consis en ac oss eams and solu ions: Sha ed p ocedu es,
me ada a and wo k lows make in eg a ion possible
•Use us ed ELIXIR esou ces: RDMki and he Da a S ewa dship
Wiza d guide you s ep by s ep
Thank you o you a en ion
Please eel welcome o con ac me ia
mijke.je en@heal h- i.nl in case o
ques ions o i you would like o explo e
any o hese esou ces u he
