Building a primary care research network – lessons to learn

Full Te ms & Condi ions o access and use can be ound a h p://www. and online.com/ac ion/jou nalIn o ma ion?jou nalCode=ip i20 Download by: [Tampe e Uni e si y] Da e: 28 No embe 2017, A : 03:06 Scandina ian Jou nal o P ima y Heal h Ca e ISSN: 0281-3432 (P in ) 1502-7724 (Online) Jou nal homepage: h p://www. and online.com/loi/ip i20 Building a p ima y ca e esea ch ne wo k – lessons o lea n Tuomas H. Koskela To ci e his a icle: Tuomas H. Koskela (2017) Building a p ima y ca e esea ch ne wo k – lessons o lea n, Scandina ian Jou nal o P ima y Heal h Ca e, 35:3, 229-230, DOI: 10.1080/02813432.2017.1358439 To link o his a icle: h ps://doi.o g/10.1080/02813432.2017.1358439 © 2017 The Au ho (s). Published by In o ma UK Limi ed, ading as Taylo & F ancis G oup. Published online: 28 Aug 2017. Submi you a icle o his jou nal A icle iews: 243 View ela ed a icles View C ossma k da a EDITORIAL Building a p ima y ca e esea ch ne wo k –lessons o lea n P ima y ca e esea ch is a necessa y p e equisi e i we a e o enhance he ole o amily physicians in heal h ca e sys ems, acili a e he op imal unc ioning o hose heal h ca e sys ems, and o imp o e he heal h o popula ions [1]. The Eu opean Gene al P ac ice Resea ch agenda has de ined ha p ima y ca e esea ch mus in ol e con ex - ele an s udies wi hin ealis ic p ima y heal h ca e se - ings [2]. Success ul esea ch equi es esou ces and ad ice o suppo clinicians. Me hodological, in e pe sonal, and o ganiza ional skills a e likewise necessa y [3,4]. In he absence o an es ablished in as uc u e o esea ch, he inclusion o pa ien s in s udies can be ime-consuming and challenging. P ima y ca e esea ch could be enhanced by building sus ainable ne wo ks and inc easing esea ch capaci y [2,5]. In he ne wo k o p ac ices, da a collec ion is acili- a ed h ough he suppo o con ibu ing colleagues. The a e o publica ion inc ease has been mo e apid in coun ies wi h es ablished esea ch ne wo ks, such as in Sco land [4,6]. The esea ch ne wo ks in he UK ha e been able o simul aneously sus ain bo h la ge-scale col- labo a i e and small-scale pe sonally de eloped p ojec s [7]. Resea ch cou ses could be a success ul ool in ne - wo king be ween pa icipan s and encou aging p ima y ca e esea ch [5]. In addi ion o high-quali y mul i-cen e s udies, ne - wo king can help build ela ionships be ween esea che s, enhance esea ch ac i i ies, as well as lay down in as uc- u e o u he s udies. I has al eady been highligh ed ha p ac ice-based esea ch ne wo ks (PBRN) can se e as lea ning communi ies and engines o imp o ing p i- ma y ca e deli e y sys ems [8,9]. Mo eo e , he links be ween academic uni s, uni e si ies, and p ac ices a e s eng hened h ough esea ch ne wo ks. In he Uni ed Kingdom, he i s PBRNs we e es ab- lished al eady in he la e 1960s [9,10]. In he 1980s, he i s s uc u ed ne wo ks we e implemen ed o p o ide expe suppo , esou ces, and aining o local p ima y ca e s a . The ne wo ks in he UK we e ini ially unded by local au ho i ies, bu since he 1990s, unding has also come om go e nmen . The mid-2000s saw he ocus shi o suppo ing la ge-scale clinical ials in o de o enhance esea ch ha mee s he p io i ies o he NHS and he Depa men o Heal h, wi h p ac ices ac ing mainly as esea ch hos s [11]. Clinical esea ch is con- duc ed h ough he UK Clinical Resea ch Ne wo k (UKCRN), which consis s o opic-speci ic ne wo ks and p ima y ca e esea ch ne wo ks (PCRN) om a ound he UK [10]. In Canada, PBRNs a e o ganized unde he Canadian P ima y Ca e Sen inel Su eillance Ne wo k (CPCSSN), which has c ea ed a common da abase o ch onic diseases and neu ological condi ions [9]. The success ul Sco ish PCRNs ha e bene i ed om he commi men o long- e m unding, while hey ha e also enabled esea che s o in eg a e in o he la ge UK ne - wo ks [4]. The g ea es challenge in he Sco ish con ex is a sho age o p ima y ca e academics who a e able o gene a e s udy ques ions ha a ac ex e nal pee - e iewed suppo [4]. In Finland, he e is no long-s anding adi ion o b oad-based PCRNs, al hough he e ha e been some small-scale local PBRNs [12]. Howe e , in 2015, h ough he unding o Pi kanmaa Hospi al Dis ic and he sup- po o he Depa men o Gene al P ac ice a he Uni e si y o Tampe e, he i s PCRN (Tu ka) ha c ossed he bo de s o hospi al dis ic s in Finland was ounded. I cu en ly in ol es 23 heal h cen e s and a esea ch g oup o 15 GPs based a ound he coun y. The i s s udy, ocusing on he non-acu e use o ECG in p ima y heal h ca e, has been ca ied ou and in as uc u e o u u e s udies has been es ablished. The aims o he Tu ka ne wo k include de eloping esea ch ac i i y and capaci y by lea ning by esea ching oge he , by c ea ing impo an esea ch ques ions om he poin o iew o p ima y ca e heal h ca e p o essio- nals, by in ol ing heal h cen es in da a collec ion, and by linking o ex e nal esea ch p ojec s. Wi h he es ab- lishmen o he Tu ka ne wo k, he Uni e si y o Tampe e has p o ided a esea ch cou se o GPs ollowing he model o he Uni e si y o Helsinki [5]. The g ea es chal- lenges acing Tu ka include sho - e m unding and he lack o assis ing esea ch s a . The No wegian model o PCRNs includes local p ima y ca e ne wo ks, a ne wo k o o al heal h ca e, and a cen- al s ee ing commi ee. The model has been desc ibed p e iously in he edi o ial o his jou nal. A challenge in No way is o sou ce unding o he ex a ime gi en o esea ch ia a ee in oiced o he se ice heal h ca e sys- em [13]. On he in e na ional le el, he exchange o scien i ic knowledge and me hodologies be ween esea che s o di e en coun ies can also p o ide ne wo king bene i s. This p ocess o mu ual exchange be ween “expe s”and “no ices”enhances he de elopmen o academic GPs in coun ies ha cu en ly ha e ela i ely li le in as uc u e in his ega d [2]. In Eu ope, he Eu opean Gene al P ac ice Resea ch Ne wo k (EGPRN) suppo s se e al SCANDINAVIAN JOURNAL OF PRIMARY HEALTH CARE, 2017 VOL. 35, NO. 3, 229–230 h ps://doi.o g/10.1080/02813432.2017.1358439 Downloaded by [Tampe e Uni e si y] a 03:07 28 No embe 2017 collabo a i e in e na ional esea ch p ojec s ha ocus, o example, on sel -ca e o common colds by p ima y ca e pa ien s o demen ia managemen in p ima y ca e in Eu opean coun ies [14–17]. In Canada, a u he s age in imp o ing he in e ac i e model o knowledge p oduc- ion and u iliza ion has been called “linkage and exchange”[9,18]. Good-quali y and useable esea ch eme ges om an ongoing ela ionship be ween esea ch- e s, esea ch unde s, and po en ial esea ch use s [9]. Local PBRNs wo k o suppo g ass oo s capaci y-build- ing in con ex ually ele an esea ch, as well as wo king o os e communi ies o p ac ice. Na ional ne wo ks se e o suppo la ge -scale esea ch ha engages senio esea che s and add esses issues o na ional impo ance. In u n, in e na ional esea ch ne wo ks could suppo he de elopmen o esea ch ac i i y in coun ies ha cu - en ly ha e ela i ely li le in as uc u e. Local and na ional esea ch ne wo ks need no neces- sa ily ha e iden ical aims. Local ne wo ks could base hei wo k on s imula ing esea ch ac i i y, while na ional ne - wo ks could p o ide suppo o he na ional heal h ca e agenda. In he u u e, he local ne wo ks wi h simila in e es s could ind each o he and collabo a e in e - na ionally, e.g. ia an in e na ional PCRN egis e . In he end, he mos impo an ma e is o ocus on ele an esea ch ques ions in co-ope a ion wi h colleagues, pa ien s, and o he s akeholde s and o o mula e esponses ha will deli e be e heal h ca e. Disclosu e s a emen Tuomas Koskela is a esea ch coo dina o in Tu ka P ima y Ca e Resea ch Ne wo k in Finland. Re e ences [1] Van Weel C, Rosse W. Imp o ing heal h ca e globally: a c i - ical e iew o he necessi y o amily medicine esea ch and ecommenda ions o build esea ch capaci y. Ann Fam Med. 2004;2:5–16. [2] EGPRN Resea ch Agenda [In e ne ]. [ci ed 2017 Jul 17]. A ailable om: h p://www.egp n.o g/page/publica ions [3] Howie JGR. Repo o he wo king g oup on esea ch in heal hca e in he communi y. Edinbu gh: Chie Scien is O ganiza ion, Sco ish Home and Heal h Depa men ; 1988. [4] Sulli an F, Hinds A, Pi ke hly M, e al. P ima y ca e esea ch ne wo k p og ess in Sco land. Eu J Gen P ac . 2014;20: 337–342. [5] Lii a H, Koskela T, Thulesius H, e al. Encou aging P ima y Ca e Resea ch: e alua ion o one-yea doc o al clinical epi- demiology esea ch cou se. Scand J P im Heal h Ca e. 2016;34:89–96. [6] Glan ille J, Kend ick T, McNally R, e al. Resea ch ou pu on p ima y ca e in Aus alia, Canada, Ge many, he Ne he lands, he Uni ed Kingdom, and he Uni ed S a es: bibliome ic ana- lysis. BMJ. 2011;342:d1028. [7] Thomas P, While A. Wes London Resea ch Ne wo k. Inc easing esea ch capaci y and changing he cul u e o p i- ma y ca e owa ds e lexi e inqui ing p ac ice. J In e p o Ca e. 2001;15:133–139. [8] Mold JW, Pe e son KA. P ima y ca e p ac ice-based esea ch ne wo ks: wo king a he in e ace be ween esea ch and quali y imp o emen . Ann Fam Med. 2005;3:S12–S20. [9] Peckham S, Hu chison B. De eloping p ima y ca e: he con i- bu ion o p ima y ca e esea ch ne wo ks. Heal hc Policy. 2012;8:56–70. [10] Sulli an F, Bu le C, Cupples M, e al. P ima y ca e esea ch ne wo ks in he Uni ed Kingdom. BMJ. 2007;334:1093–1094. [11] Howe A, Leishman H, MacDonald H. Fi o pu pose –a egional case s udy in p ima y ca e esea ch pa ne ships. P ima y Ca e Res De . 2009;10:7–13. [12] Vi jo I, M€ akel€ a K, Aho J, e al. Who ecei es an icoagulan ea men wi h wa a in and why? A popula ion-based s udy in Finland. Scand J P im Heal h Ca e. 2010;28:237–241. [13] Rø ei G. Resea ch ne wo ks in p ima y ca e: an answe o he call o be e clinical esea ch. Scand J P im Heal h Ca e. 2014;32:107–109. [14] EGPRN [In e ne ]. [ci ed 2017 Jul 17]. A ailable om: h p:// www.egp n.o g/page/cu en -p ojec s [15] Buono N, Thulesius H, Pe azzuoli F, e al. 40 yea s o bian- nual amily medicine esea ch mee ings – he Eu opean Gene al P ac ice Resea ch Ne wo k (EGPRN). Scand J P im Heal h Ca e. 2013;31:185–187. [16] Thielmann A, Ge asimo ska-Ki ano ska B, Buczkowski K, e al. Sel -ca e o common colds by p ima y ca e pa ien s: a Eu opean Mul icen e Su ey on he p e alence and pa e ns o p ac ices –The COCO S udy. E id Based Complemen Al e n a Med. 2016;2016:6949202. [17] Pe azzuoli F, Vinke S, Koskela TH, e al. Explo ing demen ia managemen a i udes in p ima y ca e: a key in o man su ey o p ima y ca e physicians in 25 Eu opean coun ies. In Psychoge ia . 2017;18:1–11. [18] Canadian Heal h Se ices Resea ch Founda ion (CHSRF) [In e ne ]. Issues in Linkage and Exchange be ween Resea che s and Decision-Make s. [ci ed 2017 Jul 17]. A ailable om: h p://www.chs .ca/mig a ed/pd /e en _ epo s/linkage_e.pd Tuomas H. Koskela Na ional Edi o o Scandina ian Jou nal o P ima y Heal h Ca e Resea ch Coo dina o , Tu ka P ima y Ca e Resea ch Ne wo k, Finland Edi o , Duodecim Medical Publica ions L d Uni e si y o Tampe e, Tampe e, Finland [email p o ec ed] ß2017 The Au ho (s). Published by In o ma UK Limi ed, ading as Taylo & F ancis G oup. 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