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Development of personal wellness information model for pervasive healthcare

Seppälä, Antto,Nykänen, Pirkko,Ruotsalainen, Pekka

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Copyright © 2012 Antto Seppälä et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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Hindawi Publishing Co po a ion Jou nal o Compu e Ne wo ks and Communica ions Volume 2012, A icle ID 596749, 10 pages doi:10.1155/2012/596749 Resea ch A icle De elopmen o Pe sonal Wellness In o ma ion Model o Pe asi e Heal hca e An o Sepp¨ al¨ a,1Pi kko Nyk¨ anen,1and Pekka Ruo salainen2 1eHeal h Resea ch G oup, School o In o ma ion Sciences, Uni e si y o Tampe e, P.O. BOX 607, 33014 Uni e si y o Tampe e, Finland 2Depa men o In o ma ion, Na ional Ins i u e o Heal h and Wel a e, P.O. Box 30, 00271 Helsinki, Finland Co espondence should be add essed o An o Sepp¨ al¨ a, an o[email p o ec ed] Recei ed 2 Ma ch 2012; Accep ed 8 Augus 2012 Academic Edi o : Rui Zhang Copy igh © 2012 An o Sepp¨ al¨ a e al. This is an open access a icle dis ibu ed unde he C ea i e Commons A ibu ion License, which pe mi s un es ic ed use, dis ibu ion, and ep oduc ion in any medium, p o ided he o iginal wo k is p ope ly ci ed. Pe asi e heal hca e and ci izen-cen e ed ca e pa adigm a e mo ing he heal hca e ou side he hospi al en i onmen . Heal hca e deli e y is becoming mo e pe sonalized and decen alized, ocusing on p e en ion and p oac i e se ices wi h a comple e iew o heal h and wellbeing. The concep o wellness has been used o desc ibe his holis ic iew o heal h, which ocuses on physical, social, and men al well-being. Pe asi e compu ing makes i possible o collec in o ma ion and offe se ices any ime and anywhe e. To suppo pe asi e heal hca e wi h wellness app oaches, seman ic in e ope abili y is needed be ween all ac o s and in o ma ion sou ces in he ecosys em. This s udy ocuses on he domain o pe sonal wellness and analyzes ela ed concep s, ela ionships, and en i onmen s. As a esul o his s udy, we ha e c ea ed an in o ma ion model ha ocuses on he ci izens’ pe spec i es and concep ualiza ions o pe sonal wellness. The model has been c ea ed based on empi ical esea ch conduc ed wi h ocus g oups. 1. In oduc ion Heal hca e deli e y is unde going a no able shi owa d pe sonalized se ices wi h dis ibu ed ca e p ocesses ha emphasize a mo e holis ic iew o heal h and wellness wi hin a ci izen-cen e ed ca e model [1–6]. The new ci izen- cen e ed ca e pa adigm ocuses on he heal h, unc ioning, and well-being o people as a whole [7]. The ocus, hen, is mo e on p e en i e, p oac i e se ices wi h he ci izen a he co e o his/he ca e, ins ead o jus ea ing diseases and symp oms [1,2,4–6]. In he u u e, i will no be enough o jus access medical his o ies o es esul s, bu ci izens’ li es yle in o ma ion, beha io al choices, and moni o ing and measu emen da a will need o be conside ed o ensu e p e en i e, p oac i e se ice [2,4–6]. Such a iew o heal h is no en i ely new. The Wo ld Heal h O ganiza ion (WHO) de ined heal h as ea ly as 1948 as “a s a e o comple e physical, men al and social well-being and no me ely he absence o disease o in i mi y” [8, page 100]. This de ini ion acknowledged a holis ic iew o heal h and suppo ed a ocus beyond disease ea men . Despi e his WHO’s de ini ion, he concep o heal h may cause misunde s andings because usually i is unde s ood o e e o a pe son’s s a e when ee o diseases, and he ocus is on medical well-being. Howe e , heal h can be de ined in many ways, o example, i can be seen as a s a e o s able physiological unc ion, lack o diseases, and absence o illnesses. One e m ha has been used o desc ibe mo e comple e heal h and well-being o people is wellness. Wellness is hough o be a subjec i e eeling o heal h and well-being [9]. Wellness conside s indi iduals’ gene al unc ioning as a whole, co e ing no only physical bu also social and psychological aspec s [9,10]. Wellness is a mul idimensional concep , and i is cu en ly being s udied in many diffe en scien i ic a eas, such as medicine, public heal h, occupa ional heal h, and men al heal h [9]. 2. Resea ch Con ex and Objec i es Pe asi e heal hca e can be de ined ei he as he applica ion o pe asi e compu ing—in o he wo ds, ubiqui ous compu ing, p oac i e compu ing, o ambien in elligence— o heal hca e, heal h, and wellness managemen , o as making heal hca e a ailable any ime and anywhe e [11]. 2 Jou nal o Compu e Ne wo ks and Communica ions The basic idea behind pe asi e heal hca e is o in eg a e heal hca e echnologies and concep s in o people’s e e yday li es. Pe asi e heal hca e is seen as suppo ing he shi owa d ci izen-cen e ed ca e [12,13]. Ve y closely ela ed o pe asi e heal hca e is he esea ch being done in he pe asi e and ubiqui ous compu ing ields. These echnology pa adigms ocus on embedded, mobile, p oac i e, con ex - awa e, collabo a i e, and senso sys ems [13]. Pe asi e heal hca e applica ions a e designed o suppo decen alized and p e en i e ca e. Pe asi e heal hca e will also help ci izens manage hei pe sonal heal h and wellness ou side he p o ide ne wo k. This model highligh s a wellness-cen e ed app oach by helping ci izens o s ay well physically, men ally, and socially and o u ilize diffe en sel - managemen and assis i e se ices [13]. Wi h pe asi e com- pu ing echnologies, i is i possible o collec all kinds o da a any ime and anywhe e [11,14]. Da a collec ion can be done by using in elligen senso s and measu emen echnologies. The objec i e o in o ma ion modeling is o desc ibe he in o ma ion in a ce ain domain o in an o ganiza ion. In o - ma ion models can be used o cap u e use s’ pe cep ions and unde s anding o sys em complexi ies [15]. In his s udy, we a e ocusing on he concep ual le el o modeling. Concep ual modeling akes as i s poin o in e es knowledge abou he domain, and he idea is o build a ep esen a ion o he eal-wo ld seman ics [16,17]. Concep ual modeling can be pe o med using in o mal o semi o mal models. Despi e o he o mali y le el o used modeling no a ion, he main aim is o cap u e concep s and ela ionships in he a ge domain [18,19]. Wi h pe asi e heal hca e and mo e pe sonalized, holis- ic, and ci izen-cen e ed se ices, we need a be e unde - s anding o he pe sonal wellness domain. This equi es mo e in o ma ion han ypical heal h eco ds include. To ully suppo he new ways o managing heal h and wellness wi h ICT and pe asi e compu ing, we need o achie e seman- ic in e ope abili y among diffe en s akeholde s, sys ems, de ices, senso s, and o he in o ma ion sou ces and use s. To achie e seman ic in e ope abili y, a con ex -awa e pe sonal wellness on ology is needed. This on ology can be used o c ea e sha ed unde s andings and allow o sha ing o he e ogeneous in o ma ion among all ac o s and sys ems in he pe sonal wellness ecosys em. This s udy is a pa o a esea ch p ojec ha examines he us ed use o pe sonal heal h and wellness in o ma ion in u u e ubiqui ous compu ing en i onmen s [20]. In his esea ch p ojec , we aim o c ea e a us ed con ex -awa e on ology o li elong pe sonal wellness managemen and an a chi ec u e model o us ed use o mul isou ce he e oge- neous in o ma ion. Be o e we can s a building a pe sonal wellness on ology, we ha e o unde s and wha wellness is, wha i s componen s a e, wha in o ma ion is ela ed o i , how people manage and main ain wellness, and wha in luences wellness. Basically, we ha e o unco e he scope and con en s o he concep o wellness. This s udy de elops he wellness concep u he and builds he basis o he de elopmen o a pe sonal wellness on ology. The i s esea ch objec i e o his s udy was o analyze he domain o pe sonal wellness. This includes bo h how he concep o pe sonal wellness is de ined in he li e a u e and how people concep ualize i as well as he scope o he domain. The second objec i e o his s udy was o c ea e a high-le el pe sonal wellness in o ma ion model o p esen ela ed concep s, cha ac e is ics, and con ex ual aspec s. Wi h his high-le el in o ma ion model, we can unde s and he concep o pe sonal wellness and s a o c ea e a mo e o mal model, in o he wo ds, a pe sonal wellness on ology. 3. Me hods As a guiding amewo k o ou esea ch, we ha e used a design science esea ch (DSR) app oach [21,22]. DSR can be seen as a p oblem-sol ing p ocess in which ac ual business needs a e add essed by building ac ual a i ac s o appli- ca ions. DSR is usually conside ed o add ess pa icula ly p oblema ic si ua ions ha a e cha ac e ized by uns able equi emen s and cons ain s, complex in e ac ions, a en- dency o change in e ms o design p ocesses o a i ac s, and dependence upon human cogni i e and social abili ies [22]. DSR is based on wo design p ocesses: build and e alua e. These wo p ocesses p oduce IT a i ac s, which can be cons uc s, models, me hods, o implemen a ions. Usually build and e alua e p ocesses a e pe o med i e a i ely o imp o e he quali y o he a i ac . He ne e al. [22]ha e de eloped se en guidelines o DSR, and we ha e ollowed hese du ing ou esea ch. These guidelines a e (a) design as an a i ac , (b) p oblem ele ance, (c) design e alua ion, (d) esea ch con ibu ion, (e) esea ch igo , ( ) design as a sea ch p ocess, and (g) communica ion o esea ch. In his s udy, we ocus on building and e alua ing bo h he cons uc s and a model in he pe sonal wellness domain. The cons uc s de ine he basic concep s, he uni e se o discou se, and he ela ions and a ibu es o he concep s. Mos o he wo k done in he domain o pe sonal wellness is ela ed o he measu emen o assessmen o wellness o well-being. They ocus on diffe en hings han wha we need o de elop a pe sonal wellness on ology. These models a e high-le el desc ip ions wi h limi ed analysis o he concep s o ela ions. Mo eo e , en i onmen al ac o s a e de ined qui e na owly. In ou esea ch, we a e mo e in e es ed in iden i ying and de ining main componen s, concep s, and ela ions in he pe sonal wellness domain. We a e c ea ing a mo e comple e and concep ually ocused model o suppo he ield o pe asi e heal hca e. This s udy had h ee main me hods o in o ma ion modeling: (1) an analysis o he li e a u e, which explo es he concep ualiza ion o pe sonal wellness, pe sonalized heal hca e, and a holis ic iew o heal h; (2) a con ex analysis o iden i y in e nal and ex e nal con ex s o pe sonal wellness; (3) ocus g oups o unde s and how people unde s and he concep o pe sonal wellness, how i can be concep ualized, and which ac o s affec pe sonal wellness. Jou nal o Compu e Ne wo ks and Communica ions 3 Table 1: Focus g oup mee ings. G oup Du a ion Pa icipan s Focus G oup 1 2 mee ings, 4hou seach Young, heal hy depa men s affmembe s, open olun a y call o ou depa men ’s mailing lis (5 and 4 pa icipan s) Iden i y and desc ibe basic concep s o pe sonal wellness G oup 2 1 mee ing, 2hou s In e nal p ojec mee ing (4 pa icipan s) Speci ica ion o concep s, edundancy educ ion, and abs ac ion le els G oup 3 1 mee ing, 2hou s Ou uni e si y’s heal h in o ma ics pos g adua e s uden s (5 pa icipan s) Concep speci ica ion and ca ego iza ion and ex e nal con ex s G oup 4 2 mee ings, 2hou seach Females aged 48–62 (9 and 10 pa icipan s); g oup was o med on a olun a y basis by sending in i a ions o pa icipan s in ano he well-being- ela ed s udy Discussion abou pa icipan s’ iews on pe sonal wellness in gene al and hen ou models in mo e de ail 3.1. Li e a u e Analysis. As a basis o he s udy, we ca ied ou an analysis o scien i ic li e a u e conce ning pe sonal wellness. The analysis included Google Schola and diffe en scien i ic publica ion da abases: Associa ion o Compu ing Machine y (ACM), ESBCOhos Academic Sea ch P emie , IEEE, PubMed, ScienceDi ec , and Sp inge Link. Fo mo e de ailed analysis, we chose a icles conce ning holis ic and mul idimensional iews on heal h and wellness ha possibly we e ela ed o he componen s o a ci izen-cen e ed heal h- ca e pa adigm. We manually analyzed a ound 100 a icles conce ning hese opics. 3.2. Con ex Analysis. The con ex analysis was pe o med using basic echniques om he equi emen s elici a ion p ocess. Requi emen s elici a ion is a p ocess used o ind necessa y equi emen s o compu e -based sys ems [23]. In ou case, he a ge was he exis ing knowledge in he li e a u e. We analyzed he applica ion domain, iden i ied he sou ce documen s ela ed o ou domain, and ecognized and analyzed ela ed s akeholde s. The s akeholde s, in ou case, we e he in e nal and ex e nal con ex s in pe sonal wellness. We iden i ied bo h ex e nal en i onmen and in e nal en i onmen , he la e o which consis s o ac o s ela ed di ec ly o he pe son he sel , such as hings ha she he sel can affec , con ol, in luence, o manage. 3.3. Empi ical S udies wi h Focus G oups. F om he li e a u e and con ex analysis, we ob ained he ma e ial ha o med he basis o ou empi ical esea ch, which was pe o med wi h ocus g oups. A ocus g oup is a me hod o g oup in e - iews in which emphasis is on he communica ion be ween he pa icipan s. The numbe o g oups o pa icipan s may a y, bu acco ding o Ki zinge [24], he ideal numbe o pa icipan s in he g oup is om ou o eigh . The idea is o gene a e da a based on in e ac ion and communica ion, ins ead o he esea che asking he pa icipan s di ec ques ions. Focus g oups a e a use ul me hod o explo ing knowledge and expe iences o people because hey can help people explain and cla i y hei hough s and iews. I is especially sui able o si ua ions in which he exis ing knowledge is inadequa e, he subjec is e y complex wi h many a iables, and he esea ch ques ions a e e y open. Some imes, hough, he g oup dynamics migh silence some pa icipan s o ideas. Me hods o conduc ing ocus g oup- cen e ed esea ch may a y, depending on se e al ac o s, such as he numbe o pa icipan s o g oups, how he g oups a e o med (p eexis ing o unknown), and he homogenei y o he e ogenei y o he pa icipan s [24,25]. The o al numbe o ocus g oup mee ings in ou s udy was six, wi h ou diffe en g oups (see Table 1). The ocus g oup mee ings we e o ganized such ha one o he esea che s ac ed as a head o he mee ings and he esea che s collec ed he esul s based on he discussions. To suppo he mee ings, we had some hemes and models, bu he s uc u e o he ocus g oups mee ings was qui e elaxed and in o mal, and he pa icipan s we e encou aged o discuss hei iews openly. The objec i e o he ocus g oups was o ga he empi ical ma e ial abou how pe sonal wellness is unde s ood and concep ualized and wha kinds o con ex s a e ela ed o i . This mean ha i was impo an o collec concep s and he ideas behind hem ha we e e ealed du ing he g oups’ communica ion. The esul s o he i s wo mee ings we e documen ed in a mind map. Mind mapping was chosen because i is an easy way o ep esen in o ma ion, simple ca ego iza ions, and simple ela ions be ween concep s. Mo eo e , mos people a e amilia wi h his echnique. Based on he i s wo ocus g oup mee ings and he pe o med analyses, we s a ed o model he pe sonal wellness domain in a mo e o mal way by using a simpli ied en i y ela ionship (ER) no a ion. The idea behind he use o he simpli ied ER model was ha he model could be easily unde s ood and modi ied by people wi hou any modeling expe ience. The esul s and modi ica ions made by he ocus g oup pa icipan s we e modeled by he esea che s. Al hough we pe o med he modeling ou sel es based on he ocus g oup mee ings, we ied, o he ex en possible, o keep he model based on he ac ual discus- sions, concep s, and iews p esen ed by he ocus g oup pa icipan s. The modeling wo k was di ided in o se en sub-models, which oge he o m he high-le el in o ma ion model o pe sonal wellness. The ocus g oup mee ings we e o ganized o suppo i e a i e build-e alua e- ype p ocess. 4. Resul s 4.1. Concep ualizing Pe sonal Wellness: Resul s om he Li e - a u e and Con ex Analysis. Wellness is a mul idimensional and mul idisciplina y concep . Al hough de ini ions may a y depending on he con ex , gene ally, wellness is hough o be a balanced s a e o a heal hy body, mind, and 4 Jou nal o Compu e Ne wo ks and Communica ions En i onmen Social ne wo ks Li es yle Heal hca e Emo ional and men al wellness Occupa ional wellness Physiological wellness Figu e 1: Pe sonal wellness domain. spi i [7,9,10,26–28]. Wellness can be seen as a high- le el concep ha in eg a es mul iple domains, including he physical, psychological, social, and spi i ual domains, and i may a y acco ding o age o cul u al con ex [29]. Also, heal h p omo ion, p e en ion, and be e unc ioning a e closely ela ed o wellness [7,27,30,31]. Wellness is a comple e, holis ic iew ha ocuses on he indi idual and his speci ic needs. I akes in o accoun he whole pe son and he en i onmen , acknowledging li es yle, beha io , cul u e, belie s, expe iences, and o he aspec s ha affec a pe son’s li e [9,10,27,31–33]. Some holis ic wellness models ha e been de eloped in he ield o clinical and counseling psychology [34]: he Wheel o Wellness by Sweeney and Wi me [35], he Indi isible Sel by Mye s and Sweeney [26], he Ci cle o Heal h by Saylo [36], and an ecosys emic app oach o heal h, well- being, and wellness by Ki s en e al. [28]. All ou models ake a holis ic, mul idimensional iew o heal h and wellness. The models we e qui e high-le el, in o mal, and gene al, and hei pu pose was diffe en om ou s, bu we we e able o ex ac some o hei concep s and o he cha ac e is ics. Fo mo e in o ma ion abou hese models and analyses, see [37]. Based on he li e a u e and con ex analyses, we we e able o iden i y some common concep s, cha ac e is ics, and p ope ies o pe sonal wellness. As a esul o he analyses, we we e able o disco e how wellness is de ined as a high- le el concep , as well as he common cha ac e is ics and componen s wellness is gene ally hough o ha e [37]: (i) I is a holis ic, mul idimensional, and mul idiscipli- na y iew o heal h and well-being; (ii) Wellness is a b oade concep han mos iews on heal h as de ined by heal hca e; i akes in o accoun en i onmen al, emo ional, in ellec ual, occupa ional, social, and spi i ual aspec s o well-being; (iii) I ocuses on comple e heal h and well-being, p e en- ion, and p oac i e se ices; (i ) I is dynamic and con ex -dependen . 4.2. Empi ical Re inemen o he Pe sonal Wellness Concep . Based on he li e a u e and con ex analyses and he i s wo ocus g oup mee ings, we c ea ed ou own iew o pe sonal wellness (Figu e 1). The iew o pe sonal wellness consis s o i e in e nal componen s and wo ex e nal con ex s. The in e nal componen s a e: li es yle, emo ional and men al wellness, occupa ional wellness, heal hca e, and physiological wellness. The wo ex e nal con ex s a e: social ne wo ks and en i onmen . In ou iew, all componen s a e linked oge he , which ep esen s he comple e and holis ic na u e o pe sonal wellness in which he e a e many diffe en ela ionships be ween componen s. This iew emphasizes he no ion ha pe sonal wellness is much mo e han jus physical heal h and well-being. In his ligh , i is clea ha i should be examined in a mul idisciplina y and mul i-p o essional con ex . The li es yle componen is a kind o backg ound com- ponen ha di ec ly affec s he o he ou in e nal compo- nen s. The li es yle componen includes concep s ega ding ac i i ies, beha io s, choices, and isk ac o s ela ed o pe son’s li es yle. Emo ional and men al wellness ocuses on concep s conce ning indi idual iden i y, psychological concep s, in ellec ual wellness, emo ions, eelings, and so Jou nal o Compu e Ne wo ks and Communica ions 5 o h. Emo ional and men al wellness also includes a pe son’s iews and alues ha affec choices and beha io s. Occupa ional wellness is abou well-being ela ed o peo- ple’s occupa ions, and in his con ex , occupa ion can mean ha he pe son is wo king, s udying, unemployed, e i ed, o an en ep eneu . Occupa ional wellness conside s he ac ual occupa ion and i s effec s on pe sonal wellness. Physiological wellness ocuses on in o ma ion ela ed o heal h and wellness ha is no bound o ce ain heal hca e p o ide , o example, condi ions, disabili ies, unc ioning, gene ics, mon- i o ing and measu ing da a, pe sonal obse a ions, and so o h. The heal hca e componen is abou he heal hca e sys- em. I includes p o ide s, medical documen s, and se ices. All o hese in e nal componen s o pe sonal wellness a e su ounded and affec ed by ex e nal con ex s—social ne wo ks and en i onmen . Social ne wo ks include all social ela ions ha affec a pe son. En i onmen desc ibes he dig- i al and physical en i onmen s ela ed o he pe son in ques- ion. I includes, o example, li ing en i onmen , se ice en i onmen , socie y, cul u al aspec s, and egula ions. The en i onmen su ounding a pe son is e y dynamic, lexible, and sensi i e, and i may change o e he cou se o a li e ime. F om he i s wo ocus g oup mee ings alone, we al eady had qui e a lo o diffe en concep s ela ed o pe sonal wellness. We had ga he ed hese concep s in o wo mind maps, so we had some ca ego iza ion and simple ela ions be ween hese concep s. F om hese mind maps, we s a ed o ca ego ize concep s in o models, loosely based on he simpli ied ER diag am. We c ea ed se en diffe en models o ep esen all he componen s o pe sonal wellness. In hese models, we ocused mo e on he concep s and hei ca ego iza ion because hese a e co e componen s o on ology de elopmen . We s a ed going h ough hese models wi h he diffe en ocus g oups o ge a mo e de ailed iew and o disco e he necessa y concep s ela ed o pe sonal wellness. In he ocus g oup mee ings, he pa icipan s we e encou aged o openly discuss cu en hemes. Be ween he ocus g oup mee ings, we analyzed he discussions and he eedback o he mee ings and based on his, we e ised he models, analyzed and added new concep s in o he models, educed edundan concep s, and conside ed diffe en ela ionships be ween concep s. The esul ing high-le el pe sonal wellness in o ma ion model will be in oduced in mo e de ail in he nex sec ion. 4.3. Pe sonal Wellness In o ma ion Model. As a esul o he combina ion o all h ee me hods, we we e able o c ea e an in o ma ion model ha desc ibes ou iew o pe sonal wellness. The li es yle componen desc ibes he domain o pe sonal li es yle and consis s o ac i i ies, beha io s, and choices ha affec he pe son’s daily li e. I also includes ac i e wellness ac i i ies and managemen concep s. These concep s a e such ha hey can usually be affec ed, con olled, in lu- enced, o managed by he pe son he sel . Li es yle ocuses on concep s ha a e qui e dependen on he pe son he sel , and hei emphasis may a y a lo be ween people. Lis ed below a e he main concep s and subconcep s o li es yle: (i) li elihood; (ii) nu i ion—expe iences, his o y, ood dia ies, die ; (iii) es / elaxa ion, sleep; (i ) isk ac o s—beha io al, en i onmen al, inhe i able; ( ) sexual beha io ; ( i) wellness ac i i ies—objec i es, sel -de elopmen , wellness main enance (pe sonal esponsibili y, ac i e ac ions; sel -e alua ion), hobbies, leisu e, i ness/ exe cise; ( ii) Wellness beha io —wellness managemen (ac i i y managemen , al e na i e medicine, beha io man- agemen , condi ions, de ices, medica ion, non- p esc ibed medica ion), heal h educa ion, p e en- ion. The emo ional and men al componen ocuses on ele- men s ela ed o people’s minds, eelings, emo ions, iden i- ies, and pe sonali ies (Figu e 2). The concep s in emo ional and men al wellness desc ibe pe sonal iews, eelings, and a i udes owa ds li e, pe sonali y, and expe iences. They also include men al heal h and possible diso de s. This componen is aimed a desc ibing wha is going on in he pe son’s mind, how he will eac o diffe en si ua ions, and how he can cope men ally. In he emo ional and men al componen , we used he ca ego iza ion o Emo ion Anno a ion and Rep esen a ion Language (EARL) [38] o desc ibe he emo ions o a pe son. Occupa ional wellness desc ibes well-being ela ed o pe son’s occupa ion. A pe son’s occupa ion can be, o exam- ple, wo k, s udying, o being unemployed o e i ed. The concep o occupa ion desc ibes he ac ual occupa ion, i s p ope ies, o how he pe son eels abou i . I has some subconcep s, which include: app ecia ion, bene i s, equali y, unc ioning, meaning ul, mo i a ion, pe o mance, espon- sibili ies, espec , ewa ding, igh s, and ype. Occupa- ional wellness includes also ollowing concep s: educa ion, employe , en i onmen , income, occupa ional sa e y and heal h, quali y o wo king li e, social ela ions, aca ion, olun ee ing, wo k bu den, wo k clima e, wo k cul u e (including leade ship and managemen ), wo king abili y, and wo king ime. Physiological wellness has o do wi h heal h and wellness- ela ed in o ma ion ou side he heal hca e p o ide ne wo k. I will help he ci izen o collec , obse e, and manage he pe sonal heal h in o ma ion. I will include diffe en heal h and wellness de ices and hei moni o ing and measu ing o da a as well as in o ma ion abou a pe son’s condi ions and unc ioning. Physiological wellness is closely ela ed o he concep o he pe sonal heal h eco d, bu he idea is o be mo e ho ough and comple e h ough an emphasis on in o ma ion and e en s ou side he heal h- ca e p o ide ne wo k. I includes he ollowing concep s: condi ions, demog aphic in o ma ion, disabili y, unc ion- ing, gene ic in o ma ion, measu emen and moni o ing da a, obse a ion, o gan sys em, i al signs, and wellness de ices. The heal hca e componen ocuses on he clinical side o wellness. I has o do wi h he egula ed heal hca e sys em 6 Jou nal o Compu e Ne wo ks and Communica ions Emo ional and men al Emo ion (EARL) S essBeha io Posi i e hough s Ca ing Quie posi i e Posi i e and li ely Nega i e hough s Nega i e and passi e Nega i e and no in con ol Nega i e and o ce ul Agi a ion Reac i e Objec i es in li e Achie emen Ful illmen Make a di e ence Happiness Balance and ha mony Sel -con ol Time managemen Li elihood Independency Func ioning and pe o ming P oblems and di icul ies In ellec ual Abili y o make choices Indi idual iden i y Religion Belie s Values Consciousness A i udes Pe sonali y Wo ld iew Sha ing Expe iences Mo al Diso de Awa eness Li e acy C i ical hinking Sel -e icacy Obse a ion Adap i e beha io Facing si ua ions C isis Cul u al iden i y Sel -knowledge Loneliness Accep ing ailu es Figu e 2: Emo ional and men al wellness. and he ac ual ca e ha he pe son ecei es. The model consis s o wo main concep s: se ice and p o ide . The se ice concep is di ided in o h ee subconcep s, o ypes: p e en ion, diagnosis, and ea men . All o hese diffe en se ices c ea e medical documen s, and om hese docu- men s, he medical his o y o a pe son is c ea ed. P o ide s a e di ided in o ou subconcep s, o ypes: p e en i e, cu a i e, p omo ional, and ehabili a i e. The social ne wo ks componen desc ibes he diffe en social ela ions and ne wo ks ha a e ela ed o a pe son. I includes amily, ela i es, and iends, bu also diffe en communi ies and social en i onmen s, and he social pa ici- pa ion o a pe son wi hin hese con ex s. Mos o he ex e nal con ex s ha affec people’s li ing and pe sonal wellness a e loca ed in he en i onmen componen . This includes diffe en kinds o en i onmen s, such as socie y, cul u al no ms, o he media (Figu e 3). The en i onmen affec s he pe son in many ways, and i may shape he possibili ies o handling pe sonal wellness. These ex e nal ac o s a e hea ily con ex -dependen and may diffe om coun y o coun y. All se en componen s combined c ea e a high-le el in o - ma ion model o he pe sonal wellness domain (Figu e 4). 5. Discussion As a esul o his esea ch, we we e able o c ea e a high-le el in o ma ion model o he pe sonal wellness domain. Usually, heal h- ela ed in o ma ion models and on ologies a e buil om he heal hca e sys ems and he se ice p o ide s’ iewpoin . He e, howe e , we ha e ins ead c ea ed ou model om he ci izens’ iewpoin . The ci izens’ iewpoin is based on he empi ical esea ch pe o med wi h he ocus g oups. We ied o ge a comp ehensi e iew wi h pa icipan s om diffe en age g oups wi h diffe en backg ounds bu as he ocus g oups we e c ea ed on a olun a y basis om a limi ed pool o people he e can be some limi a ions in he model. Also he pa icipan s can be seen being mo e in e es ed in hei heal h and wellness han egula ci izens as hey a e willing o pa icipa e in his kind o olun a y esea ch. Wi h ocus g oups we ha e c ea ed a model based on ac i e Jou nal o Compu e Ne wo ks and Communica ions 7 En i onmen Accessibili y A ailabili y Go e nmen Heal hca e Commune/ci y S a e Socie y Sa e y Social sa e y ne Equali y Cul u al alues His o y Ideology/model Cul u al backg ound Se ice en i onmen Cul u e His o y Religion Language Economy Regula ions Legal Social Economic de elopmen Educa ion Physical en i onmen Media Global Digi al en i onmen 3 d sec o Na ional iden i y Home Spa ial de elopmen Li ing en i onmen Figu e 3: The en i onmen componen . Pe sonal wellness Heal hca eDiagnosis P o ide s T ea men P e en ion Rehabili a i e P e en i e P omo ionalCu a i e Emo ional and men al Emo ion (EARL) S ess Beha io Objec i es in li e Happiness Balance and ha mony Sel -con ol In ellec ual Indi idual iden i y Consciousness Pe sonali y Sha ing En i onmen Go e nmen Heal hca e Socie y Cul u e Regula ions Media Global Li es yle Risk ac o s Wellness beha io Wellness ac i i ies Nu i ion P e en ionWellness managemen Heal h educa ion Hobbies Leisu e Fi ness/exe cise Res Li elihood Sexual beha io Occupa ional Educa ion Occupa ion Wo king ime Wo k bu den Vaca ion Volun ee ing Wo king abili y En i onmen Social ela ions Occupa ional sa e y and heal h Wo k clima e Physiological in o ma ion Func ioning Moni o ing da a Obse a ion O gan sys em Vi al signs Disabili y Gene ic in o ma ion Condi ion Social ne wo ks Communi y Family F iends Rela i es Social en i onmen Social pa icipa ion Income Diso de Demog aphic in o ma ion Se ice en i onmen Physical en i onmen Digi al en i onmen 3 d sec o Measu emen da a Obse a ion C isis Sel -knowledge Sel -e icacy Adap i e beha io Loneliness Li ing en i onmen Home Quali y o wo king li e Wo k cul u e Employe WMain enance Figu e 4: The highes le el concep s o pe sonal wellness. and conscious people who a e no heal h p o essionals o ep esen a i es o any heal h o ganiza ions. The model is based on he ocus g oup esea ch, and we ha e ied o model he domain and he concep s acco ding o he pa icipan s. The guiding p inciples o he modeling wo k we e how ci izens see hei pe sonal wellness, wha hey conside o be he impo an concep s, how hey ca ego ize hese concep s, and how hey unde s and he no ion o comple e, holis ic heal h and wellness. The esea ch p ocess 8 Jou nal o Compu e Ne wo ks and Communica ions was pe o med i e a i ely, ollowing he build-e alua e idea o design science esea ch. We ha e iden i ied he main componen s o pe sonal wellness and desc ibed ela ed in o ma ion and i s concep u- aliza ion. In he model, we ha e iden i ied he en i onmen al and ex e nal con ex s ela ed o pe sonal wellness. In ou model, we p esen many impo an concep s. Based on ou ca ego iza ion o hese, we can come o unde s and he basic ela ions be ween concep s, and we can see some is- a ela ionships. The e a e s ill some limi a ions ela ed o he de ined concep s in e ms o he de elopmen o he on ology, as some o he concep s a e qui e abs ac , and hei explici de ini ion can be challenging. Also, he e is a g ea numbe o ela ions and ela ionship ypes in he domain, and mos o he concep s a e in e connec ed. He ne e al. [22] ha e de ined se en guidelines ha should be ollowed when pe o ming design science esea ch. The i s guideline is o design as an a i ac . In ou esea ch, we ha e buil a i ac s such as mind maps o desc ibe common concep s— he cons uc s o he domain—and a high-le el in o ma ion model o desc ibe he domain, how i is concep ualized, i s scope, and some ela ionships. The second guideline is p oblem ele ance, which means ha he esea ch p oblem should be ele an and sol e some impo an p oblem in he cons i uen communi y. Pe asi e heal hca e and a mo e pe sonalized, comple e way o manag- ing pe sonal heal h and wellness a e eme ging, ye cu en ly he e is no eal consensus ega ding wha pe sonal wellness ac ually is o i s componen s. Mos o he esea ch done on wellness has ocused on he measu emen o assessmen o wellness. Also, he models ela ed o wellness a e high-le el desc ip ions wi h limi ed concep ual de ini ions and ela- ionships. Mos o he in o ma ion models and on ologies in he heal h domain a e ep esen a ions om he heal h se ice p o ide s, clinical, o medical poin s o iew. Ou esea ch b ings new pe spec i es in o he pe sonal wellness domain by de ining he ci izens’ pe spec i e o suppo he de elopmen o a pe sonal wellness on ology and seman ic in e ope abili y in he domain. Thus, ou esea ch p oblem is ele an in he pe sonalized heal h and wellness domain. The hi d guideline is abou design e alua ion. He ne e al. [22] emphasized ha he u ili y, quali y, and efficacy o an a i ac mus be demons a ed by e alua ion, which is a c ucial pa o he design p ocess. Ou design p ocess was i e a i e, so we buil and e alua ed he model in a ious phases, bu he e alua ion o he model alone s ill insufficien . The s udy con inues wi h an assessmen phase, in which he de eloped model is e alua ed wi h espec o i s alidi y and po en ial impac on ci izens’ pe sonal heal h and wellness. The model will be e alua ed wi h use cases and usage scena ios. Design science esea ch, acco ding o he ou h guideline, should clea ly con ibu e in a leas one o he ollowing ways: he design a i ac , design con- s uc ion knowledge, o design e alua ion knowledge [22]. Ou esea ch makes a signi ican con ibu ion by de ining he pe sonal wellness domain, how i is concep ualized, and wha he necessa y concep s and ex e nal ac o s a e. The i h guideline emphasizes ha he esea ch should be conduc ed wi h igo ous me hods. As he domain in ques ion was complex, mul idimensional, qui e abs ac , and based on ci izens’ pe spec i es, we began wi h quali a i e me hods, like ocus g oups and in o mal modeling me hods. Al hough, he in o mal models lacked wi h o malism we we e able o ep esen he complex and mul idimensional domain and he models we e a he easy o a e age ci izens wi h no modeling expe ience o unde s and, e alua e, and modi y. We had se e al diffe en ocus g oups o ge mo e he e ogeneous iews o pe sonal wellness so ha we could ackle he six h guideline. This guideline emphasizes he impo ance o an i e a i e design p ocess and insis s ha design should be a p ocess o sea ching such ha he design p oblem becomes mo e ocused and he solu ion mo e ele an [22]. The nex s ep in his s udy is he de elopmen o he on ology and con ex -awa e a chi ec u e. Thus, he solu ion will be ede ined in a p ocess o sea ching. The se en h guideline is ha he esea ch should be communi- ca ed o echnology and managemen audiences. This will be ealized in la e phases o he p ojec . 6. Conclusions In his esea ch, we ha e app oached comple e, holis ic heal h and well-being om he ci izens’ pe spec i e. We ha e u he e ined he concep o pe sonal wellness h ough empi ical me hods. Based on an analysis o he li e a u e, a con ex analysis, and empi ical esea ch, we ha e c ea ed ou own iew o pe sonal wellness. In o de o suppo in e - ope able, ci izen-cen e ed se ices wi h upcoming pe asi e wellness ools, we ha e iden i ied he scope o he pe sonal wellness domain. As a esul o his esea ch, we ha e de el- oped a high-le el in o ma ion model ha desc ibes he main concep s and some ela ionships ela ed o pe sonal wellness. Wi h his in o ma ion model, we ha e s a ed o de elop a con ex -awa e on ology. Ou esea ch b ings new knowledge o he ield o pe asi e heal hca e by iden i ying he ci izens’ pe spec i es and concep ualiza ions o pe sonal wellness. Ou model desc ibes he domain o pe sonal wellness in mo e de ail han o he models ha ha e been de eloped in clinical and counseling psychology. Such p e ious models emain gene al, while we ha e gone deepe in o he pe sonal wellness domain by de ining mo e concep s, ela ionships, and p ope ies. Mo eo e , he ocus o ou model is diffe en om p e ious wo k, as we a e add essing he p oblem om an in o ma ion sys em science pe spec i e, and we a e using adiffe en kind o ep esen a ion s yle ha is mo e sui able in ou con ex . We a e ocusing on he pe asi e heal hca e ield, and ou in en ions a e o suppo he de elopmen o a pe sonal wellness on ology o li elong pe sonal wellness managemen and an a chi ec u e model o us ed use o mul isou ce he e ogeneous in o ma ion. The nex phases in ou esea ch a e an assessmen o ou model and he de elopmen o he pe sonal wellness on ology. The assessmen phase ocuses on he e alua ion o he alidi y and u ili y o he model and he iden i ica ion o he impac he sha ed use o wellness in o ma ion has on ci - izens’ wellness managemen and on how ci izens can con ol and manage he use o hei in o ma ion. In he de elopmen o he pe sonal wellness on ology, we ha e o model he Jou nal o Compu e Ne wo ks and Communica ions 9 con ex ual aspec s ha a e ela ed o diffe en concep s o suppo mul iuse and mul isys em en i onmen s wi h he e ogeneous in o ma ion sou ces. Fu he mo e, we ha e o conside p i acy, con iden iali y, and da a secu i y issues in he on ology, as mos o he in o ma ion is p i a e and pe sonal, and i s p ocessing may be egula ed by legisla ion. By modeling such p i acy and secu i y aspec s, we can ensu e ha , in he u u e, pe asi e heal hca e will allow ci izens o con ol he p ocessing o hei in o ma ion dynamically. Acknowledgmen The au ho s acknowledge he unding o his T us ed eHeal h and eWel a e Space (THEWS) esea ch p ojec by he Finnish Academy o Sciences in he MOTIVE Resea ch P og amme du ing 2009–2012. Re e ences [1] P. Nyk¨ anen, “Requi emen s o use iendly pe sonal eheal h in o ma ion sys ems,” in S udies in Heal h Technology and In o- ma ics, ol. 137, pp. 367–372, IOS P ess, 2008. [2] L. L. Be y and A. M. Mi abi o, “Inno a i e heal hca e deli - e y,” Business Ho izons, ol. 53, no. 2, pp. 157–169, 2010. [3] C. Koop, R. Moshe , L. Kun e al., “Fu u e deli e y o heal h ca e: cybe ca e,” IEEE Enginee ing in Medicine and Biology Magazine, ol. 27, no. 6, pp. 29–38, 2008. [4] M. Ohashi, M. Ho i, and S. Suzuki, “Ci izen-cen ic e- heal hca e managemen based on pe asi e au hen ica ion- New ICT oadmap o ac i e ageing,” in 2010 4 h In e na ional Con e ence on Pe asi e Compu ing Technologies o Heal hca e, Pe asi e Heal h 2010, pp. 1–8, Ma ch 2010. [5] W. P a , K. Un uh, A. Ci an, and M. Skeels, “Pe sonal heal h in o ma ion managemen ,” Communica ions o he ACM, ol. 49, no. 1, pp. 51–55, 2006. [6] P. Nyk¨ anen and A. Sepp¨ al¨ a, “Collabo a i e app oach o sus ainable ci izen-cen e ed heal h ca e,” in C i ical Issues o he De elopmen o Sus ainable E-Heal h Solu ions, Heal hca e Deli e y in he In o ma ion Age, N. Wick amasinghe e al., Ed., pp. 115–134, Sp inge , New Yo k, NY, USA, 2012. [7] J. S. La son, “The concep ualiza ion o heal h,” Medical Ca e Resea ch and Re iew, ol. 56, no. 2, pp. 123–136, 1999. [8] Wo ld Heal h O ganiza ion, P eamble o he Cons i u ion o he Wo ld Heal h O ganiza ion as Adop ed by he In e na ional Heal h Con e ence, Wo ld Heal h O ganiza ion, New Yo k, NY, USA, 1948. [9] S. Mackey, “Towa ds an on ological heo y o wellness: a discussion o concep ual ounda ions and implica ions o nu sing,” Nu sing Philosophy, ol. 10, no. 2, pp. 103–112, 2009. [10] N. Oguz-Du an and E. Teze , “Wellness and sel -es eem among u kish uni e si y s uden s,” In e na ional Jou nal o he Ad ancemen o Counselling, ol. 31, no. 1, pp. 32–44, 2009. [11] I. Ko honen and J. E. Ba d am, “In oduc ion o he special sec iononpe asi eheal hca e,”IEEE T ansac ions on In o - ma ion Technology in Biomedicine, ol. 8, no. 3, pp. 229–234, 2004. [12] B. A n ich, O. Mayo a, J. Ba d am, and G. T ¨ os e , “Pe asi e heal hca e pa ing he way o a pe asi e, use -cen e ed and p e en i e heal hca e model,” Me hods o In o ma ion in Medi- cine, ol. 49, no. 1, pp. 67–73, 2010. [13] J. E. Ba d am, “Pe asi e heal hca e as a scien i ic discipline,” Me hods o In o ma ion in Medicine, ol. 47, no. 3, pp. 178–185, 2008. [14] U. Va shney, “Pe asi e heal hca e and wi eless heal h moni- o ing,” Mobile Ne wo ks and Applica ions, ol.12,no.2-3,pp. 113–127, 2007. [15] K. Siau and Y. Wang, “Cogni i e e alua ion o in o ma ion modeling me hods,” In o ma ion and So wa e Technology, ol. 49, no. 5, pp. 455–474, 2007. [16] Y. Wand, D. E. Mona chi, J. Pa sons, and C. C. Woo, “Theo- e ical ounda ions o concep ual modelling in in o ma ion sys ems de elopmen ,” Decision Suppo Sys ems, ol. 15, no. 4, pp. 285–304, 1995. [17] R. Webe , “Concep ual modelling and on ology: possibili ies and pi alls,” Jou nal o Da abase Managemen , ol.14,no.3, pp. 1–20, 2003. [18] H. S. Pin o and J. P. Ma ins, “On ologies: how can hey be buil ?” Knowledge and In o ma ion Sys ems, ol.6,no.4,pp. 441–464, 2004. [19] H. S. Pin o and J. P. Ma ins, On ologies: How Can They Be Buil ? Sp inge , New Yo k, NY, USA, 2004. [20] P. Nyk¨ anen, P. Ruo salainen, B. Blobel, and A. Sepp¨ al¨ a, “Resea ch on us ed pe sonal heal h and wellness in o ma- ion in ubiqui ous heal h in o ma ion space,” in P oceedings o he In e na ional Fede a ion o Medical and Biological Engi- nee ing (IFMBE ’09), pp. 432–435, Sep embe 2009. [21] S. T. Ma ch and G. F. Smi h, “Design and na u al science esea ch on in o ma ion echnology,” Decision Suppo Sys- ems, ol. 15, no. 4, pp. 251–266, 1995. [22] A.R.He ne ,S.T.Ma ch,J.Pa k,andS.Ram,“Designscience in in o ma ion sys ems esea ch,” MIS Qua e ly, ol. 28, no. 1, pp. 75–105, 2004. [23] D. Zowghi and C. Coulin, “Requi emen s elici a ion: a su ey o echniques, app oaches, and ools,” Enginee ing and Man- aging So wa e Requi emen s, pp. 19–46, 2005. [24] J. Ki zinge , “In oducing ocus g oups,” BMJ, ol. 311, no. 7000, pp. 299–302, 1995. [25] R. A. Powell and H. M. Single, “Focus g oups,” In e na ional Jou nal o Quali y in Heal h Ca e, ol. 8, no. 5, pp. 499–504, 1996. [26] J. E. Mye s and T. J. Sweeney, “The indi isible sel : an e idence- based model o wellness,” Jou nal o Indi idual Psychology, ol. 60, no. 3, pp. 234–245, 2004. [27] C. Soomlek and L. Benedicen i, “Ope a ional wellness model: a wellness model designed o an agen -based wellness isu- aliza ion sys em,” in 2nd In e na ional Con e ence on eHeal h, Telemedicine, and Social Medicine (ETELEMED ’10), pp. 45– 50, Feb ua y 2010. [28] T. G. J. C. Ki s en, H. J. L. an de Wal , and C. T. Viljoen, “Heal h, well-being and wellness: an an h opological eco- sys emic app oach,” Heal h SA Gesondheid, ol. 14, pp. 1–7, 2009. [29] T. L. Schus e , M. Dobson, M. Jau egui, and R. H. I. Blanks, “Wellness li es yles I: a heo e ical amewo k linking wellness, heal h li es yles, and complemen a y and al e na- i e medicine,” Jou nal o Al e na i e and Complemen a y Medicine, ol. 10, no. 2, pp. 349–356, 2004. [30] P. Con ad, “Wellness as i ue: mo ali y and he pu sui o heal h,” Cul u e, Medicine and Psychia y, ol.18,no.3,pp. 385–401, 1994. [31] E. W. S e ling, S. A. Von Esenwein, S. Tucke , L. F icks, and B. G. D uss, “In eg a ing wellness, eco e y, and sel -man- agemen o men al heal h consume s,” Communi y Men al Heal h Jou nal, ol. 46, no. 2, pp. 130–138, 2010.